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Quality of life information and trust in physicians among families of children with life-limiting conditions.

Patient related outcome measures

Huang IC, Kenzik KM, Sanjeev TY, Shearer PD, Revicki DA, Nackashi JA, Shenkman EA.
PMID: 21760753
Patient Relat Outcome Meas. 2010 Oct;2010(1):141-148. doi: 10.2147/prom.s12564.

PURPOSE: To examine information that parents of children with life-limiting conditions want to discuss with children's physicians to assist decision-making, and whether the desire for this information is associated with parents' trust in physicians. STUDY DESIGN: A cross-sectional study...

Quality of Life Measurement for Children with Life-Threatening Conditions: Limitations and a New Framework.

Child indicators research

Huang IC, Wen PS, Revicki DA, Shenkman EA.
PMID: 21760876
Child Indic Res. 2011 Jan;4(1):145-160. doi: 10.1007/s12187-010-9079-x.

About 500,000 children are coping with life-threatening conditions (LTC) in the United States every year. Different service programs such as an integrated pediatric palliative care program may benefit health-related quality of life (HRQOL) which is a great concern of...

Showing 1 to 2 of 2 entries