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[Clinical research in rare diseases: new challenges, opportunities and ethical issues].

Anales de pediatria

Alfonso Farnós I, Alcalde Bezhold G.
PMID: 32921623
An Pediatr (Engl Ed). 2020 Oct;93(4):219-221. doi: 10.1016/j.anpedi.2020.06.029. Epub 2020 Sep 10.

No abstract available.

Rare Lung Disease Research: National Heart, Lung, and Blood Institute's Commitment to Partnership and Progress.

Chest

Vuga LJ, Aggarwal NR, Reineck LA, Kalantari R, Banerjee K, Kiley J.
PMID: 31121150
Chest. 2019 Sep;156(3):438-444. doi: 10.1016/j.chest.2019.05.004. Epub 2019 May 20.

No abstract available.

Understanding rare renal conditions.

Nursing times

Wise S.
PMID: 24592658
Nurs Times. 2013 Dec 23-2014 Jan 14;109(51):14-5.

Rare renal conditions can lead to structural and functional problems in the kidney resulting in long-term health problems and possible chronic kidney disease. This article provides an overview of some of these rare conditions.

Progress in Rare Diseases Research 2010-2016: An IRDiRC Perspective.

Clinical and translational science

Dawkins HJS, Draghia-Akli R, Lasko P, Lau LPL, Jonker AH, Cutillo CM, Rath A, Boycott KM, Baynam G, Lochmüller H, Kaufmann P, Le Cam Y, Hivert V, Austin CP.
PMID: 28796411
Clin Transl Sci. 2018 Jan;11(1):11-20. doi: 10.1111/cts.12501. Epub 2017 Oct 23.

No abstract available.

Showing 1 to 4 of 4 entries