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Expert Rev Pharmacoecon Outcomes Res. 2005 Jun;5(3):353-64. doi: 10.1586/14737167.5.3.353.

KIDSCREEN-52 quality-of-life measure for children and adolescents.

Expert review of pharmacoeconomics & outcomes research

Ulrike Ravens-Sieberer, Angela Gosch, Luis Rajmil, Michael Erhart, Jeanet Bruil, Wolfgang Duer, Pascal Auquier, Mick Power, Thomas Abel, Ladislav Czemy, Joanna Mazur, Agnes Czimbalmos, Yannis Tountas, Curt Hagquist, Jean Kilroe, European Kidscreen Group

Affiliations

  1. Child and Adolescent Health, Robert Koch Institute, Seestrasse 10, 13353 Berlin, Germany. [email protected]

PMID: 19807604 DOI: 10.1586/14737167.5.3.353

Abstract

This study describes the development and reports the first psychometric results of the European KIDSCREEN-52 generic health-related quality-of-life questionnaire for children and adolescents. The KIDSCREEN-52, including ten dimensions, was applied in a European survey involving 12 countries (i.e., Austria, Switzerland, Czech Republic, Germany, Greece, Spain, France, Hungary, The Netherlands, Poland, Sweden and the UK) and 22,110 children and adolescents aged between 8 and 18 years of age. Questionnaire development included a literature search, expert consultation, and focus group discussions with children and adolescents. After definition of dimensions and collection of items, a translation process following international translation guidelines, cognitive interviews and a pilot test were performed. Analysis regarding psychometric properties showed Cronbach-alpha ranged from 0.77 to 0.89. Correlation coefficients between KINDL(R) and KIDSCREEN-52 dimensions were high for those assessing similar constructs (r = 0.51-0.68). All KIDSCREEN-52 dimensions showed a gradient according to socioeconomic status and most dimensions showed a gradient according to psychosomatic health complaints. The first results demonstrate that the KIDSCREEN-52 questionnaire is a promising cross-cultural measure of health-related quality-of-life assessment for children and adolescents in Europe.

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