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Tomlinson D, Hendershot E, Bartels U, et al. Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care. J Pediatr Oncol Nurs. 2011;28(6):319-25doi: 10.1177/1043454211418666.
Tomlinson, D., Hendershot, E., Bartels, U., Maloney, A. M., Armstrong, C., Wrathall, G., & Sung, L. (2011). Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care. Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses, 28(6), 319-25. https://doi.org/10.1177/1043454211418666
Tomlinson, Deborah, et al. "Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care." Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses vol. 28,6 (2011): 319-25. doi: https://doi.org/10.1177/1043454211418666
Tomlinson D, Hendershot E, Bartels U, Maloney AM, Armstrong C, Wrathall G, Sung L. Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care. J Pediatr Oncol Nurs. 2011 Nov-Dec;28(6):319-25. doi: 10.1177/1043454211418666. PMID: 22194144.
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J Pediatr Oncol Nurs. 2011 Nov-Dec;28(6):319-25. doi: 10.1177/1043454211418666.

Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care.

Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

Deborah Tomlinson, Eleanor Hendershot, Ute Bartels, Anne-Marie Maloney, Christine Armstrong, Glynis Wrathall, Lillian Sung

Affiliations

  1. The Hospital for Sick Children, Toronto, Ontario, Canada.

PMID: 22194144 DOI: 10.1177/1043454211418666

Abstract

In children 18 years and younger with cancer and no reasonable chance for cure the authors used a cross-sectional study design to (1) describe concordance between fathers' and mothers' evaluation of quality of life (QoL) and (2) determine parental correlation for how factors such as hope, anticipated QoL, and prolonged survival time influence decisions between supportive care alone versus aggressive chemotherapy. Both parents of 13 children performed PedsQL 4.0 Generic Core Scales, Acute Cancer Module, and Multidimensional Fatigue Scale. Concordance was assessed using intraclass correlation coefficient (ICC). Parents reported preferences of supportive care versus aggressive chemotherapy in a hypothetical scenario and rated factors that influenced decision making. Concordance was variable across QoL domains, better for physical health (ICC = 0.46), nausea (ICC = 0.61), general fatigue (ICC = 0.50), and sleep/rest fatigue (ICC = 0.76). Correlation was variable between parents on the influence of factors on their decision, with particularly poor correlation for importance of hope (r = -0.24). Variable concordance was reported between parental assessment of child QoL and factors influencing their decision making, suggesting parents may have different perspectives in decision making and that understanding both is important in clinical care.

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