Ecancermedicalscience. 2011;5:228. doi: 10.3332/ecancer.2011.228. Epub 2011 Dec 20.

A dedicated website for cancer subjects, the nutritional support study: preliminary results.

Ecancermedicalscience

P Gnagnarella, Am Misotti, L Santoro, D Akoumianakis, G Milolidakis, F De Lorenzo, C Lombardo, R Sullivan, G McVie

PMID: 22276066 PMCID: PMC3251511 DOI: 10.3332/ecancer.2011.228

Abstract

BACKGROUND: The Internet has become a widely used resource for information on cancer and for support. As part of the EuroCancerComs project (www.eurocancercoms.eu), an intervention study has been designed. The study aims to help patients with cancer providing an Internet "space" where to find information about nutritional care.

METHODS: The study consists of a randomized 6-month intervention. The website (www.supportonutrizionale.it) hosts a contents area, prepared according to guidelines and recommendations, a forum and a blog. Subjects have been randomly allocated in intervention (IG) and control group (CG). IG has a free access to the website and it is involved in live activities, discussions and examinations. CG receives the same information by e-mail, without having access to the website. Three questionnaires are used to evaluate the effectiveness of the approach, concerning quality of life (QoL), psychological status and nutrition facts.

RESULTS: Since the study startup, 191 subjects have been screened, and 58 (30%) have been randomized. Participants in both groups are mainly females, married and have at least a high school education level. Participants experienced a high psychological distress for 27% of IG and 33% of CG considering the four classes of scores at the baseline. Regarding QoL, a low "role functioning" score for IG and "emotional functioning" and "social functioning" scores for both groups are reported, while "fatigue" and "nausea and vomiting" respectively for IG and CG are the worsened symptoms compared with reference values. Considering the nutrition facts questionnaire, subjects showed a medium-high score profile and the worst scale regards "Nutrition and cancer knowledge". From the beginning of the study, a total of 48 actions have been registered, including votes to contents, comments and forum messages.

CONCLUSION: The Internet has made possible the new forms of interaction and knowledge, and it is likely to become essential to gain access to health information. The results of this randomized intervention may help in the evaluation of the efficacy of these interventions in cancer setting.

References

1. Clin Oncol (R Coll Radiol). 2007 Oct;19(8):616-27 - PubMed
2. J Gen Intern Med. 2001 Jul;16(7):435-45 - PubMed
3. J Natl Cancer Inst. 1993 Mar 3;85(5):365-76 - PubMed
4. Br J Cancer. 2009 Dec 3;101 Suppl 2:S31-9 - PubMed
5. CA Cancer J Clin. 2003 Nov-Dec;53(6):356-71 - PubMed
6. J Med Internet Res. 2009 Nov 27;11(4):e48 - PubMed
7. Ann Oncol. 2004 May;15(5):721-5 - PubMed
8. Patient Educ Couns. 2007 Mar;65(3):342-50 - PubMed
9. J Med Internet Res. 2003 Dec 19;5(4):e33 - PubMed
10. J Med Internet Res. 2002 Jan-Mar;4(1):e4 - PubMed
11. Br J Cancer. 2010 Apr 27;102(9):1348-54 - PubMed
12. West J Med. 1999 Jun;170(6):332-3 - PubMed
13. BJU Int. 2000 Nov;86(7):834-9 - PubMed
14. Ann Behav Med. 2006 Jun;31(3):205-23 - PubMed
15. Cancer. 2003 Mar 1;97(5):1164-73 - PubMed
16. Ann Behav Med. 2005 Aug;30(1):54-64 - PubMed
17. Support Care Cancer. 2010 Dec;18(12):1545-52 - PubMed
18. Cancer Nurs. 2002 Dec;25(6):417-24 - PubMed
19. Patient Educ Couns. 2008 Mar;70(3):315-37 - PubMed
20. Oncology. 1996 Jul-Aug;53(4):295-302 - PubMed
21. JAMA. 1998 Oct 21;280(15):1371-5 - PubMed
22. Health Info Libr J. 2002 Jun;19(2):98-108 - PubMed
23. JAMA. 2002 May 22-29;287(20):2691-700 - PubMed
24. Patient Educ Couns. 2010 Apr;79(1):5-13 - PubMed

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