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Stinson JN, Connelly M, Jibb LA, et al. Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testing. Pediatr Rheumatol Online J. 2012;10(1):7doi: 10.1186/1546-0096-10-7.
Stinson, J. N., Connelly, M., Jibb, L. A., Schanberg, L. E., Walco, G., Spiegel, L. R., Tse, S. M., Chalom, E. C., Chira, P., & Rapoff, M. (2012). Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testing. Pediatric rheumatology online journal, 10(1), 7. https://doi.org/10.1186/1546-0096-10-7
Stinson, Jennifer N, et al. "Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testing." Pediatric rheumatology online journal vol. 10,1 (2012): 7. doi: https://doi.org/10.1186/1546-0096-10-7
Stinson JN, Connelly M, Jibb LA, Schanberg LE, Walco G, Spiegel LR, Tse SM, Chalom EC, Chira P, Rapoff M. Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testing. Pediatr Rheumatol Online J. 2012 Apr 10;10(1):7. doi: 10.1186/1546-0096-10-7. PMID: 22490427; PMCID: PMC3366881.
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Pediatr Rheumatol Online J. 2012 Apr 10;10(1):7. doi: 10.1186/1546-0096-10-7.

Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testing.

Pediatric rheumatology online journal

Jennifer N Stinson, Mark Connelly, Lindsay A Jibb, Laura E Schanberg, Gary Walco, Lynn R Spiegel, Shirley Ml Tse, Elizabeth C Chalom, Peter Chira, Michael Rapoff

Affiliations

  1. University of Toronto Lawrence S, Bloomberg Faculty of Nursing, 155 College Street, Toronto ON M5T 1P8, Canada. [email protected].

PMID: 22490427 PMCID: PMC3366881 DOI: 10.1186/1546-0096-10-7

Abstract

BACKGROUND: Pain in children with rheumatic conditions such as arthritis is common. However, there is currently no standardized method for the assessment of this pain in children presenting to pediatric rheumatologists. A more consistent and comprehensive approach is needed to effectively assess, treat and monitor pain outcomes in the pediatric rheumatology population. The objectives of this study were to: (a) develop consensus regarding a standardized pain assessment tool for use in pediatric rheumatology practice and (b) test the feasibility of three mediums (paper, laptop, and handheld-based applications) for administration.

METHODS: In Phase 1, a 2-stage Delphi technique (pediatric rheumatologists and allied professionals) and consensus meeting (pediatric pain and rheumatology experts) were used to develop the self- and proxy-report pain measures. In Phase 2, 24 children aged 4-7 years (and their parents), and 77 youth, aged 8-18 years, with pain, were recruited during routine rheumatology clinic appointments and completed the pain measure using each medium (order randomly assigned). The participant's rheumatologist received a summary report prior to clinical assessment. Satisfaction surveys were completed by all participants. Descriptive statistics were used to describe the participant characteristics using means and standard deviations (for continuous variables) and frequencies and proportions (for categorical variables)

RESULTS: Completing the measure using the handheld device took significantly longer for youth (M = 5.90 minutes) and parents (M = 7.00 minutes) compared to paper (M = 3.08 and 2.28 minutes respectively p = 0.001) and computer (M = 3.40 and 4.00 minutes respectively; p < 0.001). There was no difference in the number of missed responses between mediums for children or parents. For youth, the number of missed responses varied across mediums (p = 0.047) with the greatest number of missed responses occurring with the handheld device. Most children preferred the computer (65%, p = 0.008) and youth reported no preference between mediums (p = 0.307). Most physicians (60%) would recommend the computer summary over the paper questionnaire to a colleague.

CONCLUSIONS: It is clinically feasible to implement a newly developed consensus-driven pain measure in pediatric rheumatology clinics using electronic or paper administration. Computer-based administration was most efficient for most users, but the medium employed in practice may depend on child age and economic and administrative factors.

References

  1. Arthritis Care Res (Hoboken). 2010 Feb;62(2):219-25 - PubMed
  2. Arthritis Rheum. 2003 May;48(5):1390-7 - PubMed
  3. J Rheumatol. 2004 Nov;31(11):2290-4 - PubMed
  4. Arthritis Care Res (Hoboken). 2011 Jan;63(1):10-6 - PubMed
  5. Eur J Pain. 2009 Apr;13(4):354-65 - PubMed
  6. Curr Rheumatol Rep. 2008 Apr;10(2):142-6 - PubMed
  7. Arthritis Rheum. 2006 Jun 15;55(3):355-63 - PubMed
  8. Pain Med. 2007 Oct;8 Suppl 3:S85-93 - PubMed
  9. Arthritis Care Res (Hoboken). 2010 Jun;62(6):811-20 - PubMed
  10. Biometrics. 1977 Mar;33(1):159-74 - PubMed
  11. Pain Manag. 2011 Jan;1(1):61-68 - PubMed
  12. J Pain. 2007 Oct;8(10):774-92 - PubMed
  13. Pain. 2001 Aug;93(2):173-183 - PubMed
  14. Arthritis Rheum. 2005 Sep;52(9):2854-64 - PubMed
  15. Pediatrics. 2010 Nov;126(5):971-81 - PubMed
  16. Pain. 2003 Aug;104(3):639-646 - PubMed
  17. Pediatr Clin North Am. 2005 Apr;52(2):611-39, vii - PubMed
  18. Pain. 2004 Feb;107(3):213-219 - PubMed
  19. J Pain. 2010 Nov;11(11):1109-19 - PubMed
  20. Behav Res Methods. 2005 Feb;37(1):148-54 - PubMed
  21. J Pain. 2008 Sep;9(9):771-83 - PubMed

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