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Noreau L, Noonan VK, Cobb J, et al. Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI. Top Spinal Cord Inj Rehabil. 2014;20(4):265-76doi: 10.1310/sci2004-265.
Noreau, L., Noonan, V. K., Cobb, J., Leblond, J., & Dumont, F. S. (2014). Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI. Topics in spinal cord injury rehabilitation, 20(4), 265-76. https://doi.org/10.1310/sci2004-265
Noreau, Luc, et al. "Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI." Topics in spinal cord injury rehabilitation vol. 20,4 (2014): 265-76. doi: https://doi.org/10.1310/sci2004-265
Noreau L, Noonan VK, Cobb J, Leblond J, Dumont FS. Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI. Top Spinal Cord Inj Rehabil. 2014;20(4):265-76. doi: 10.1310/sci2004-265. PMID: 25477740; PMCID: PMC4252127.
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Top Spinal Cord Inj Rehabil. 2014;20(4):265-76. doi: 10.1310/sci2004-265.

Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI.

Topics in spinal cord injury rehabilitation

Luc Noreau, Vanessa K Noonan, John Cobb, Jean Leblond, Frédéric S Dumont

Affiliations

  1. Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS) and Université Laval , Quebec City , Canada.
  2. Rick Hansen Institute , Vancouver , Canada ; Division of Spine, Department of Orthopedics, University of British Columbia , Vancouver , Canada.
  3. Rick Hansen Institute , Vancouver , Canada ; Vancouver General Hospital , Vancouver , Canada.

PMID: 25477740 PMCID: PMC4252127 DOI: 10.1310/sci2004-265

Abstract

BACKGROUND: There is a lack of literature regarding service needs of people with SCI living in the community. Better assessment of expressed and met and unmet needs would help in the development of effective service delivery.

OBJECTIVE: From a national SCI Community Survey in Canada, the aim was to identify the most critical service needs of people living in the community at least 1 year post discharge from rehabilitation and the support they received to meet their needs.

METHOD: Data were collected mainly through a secure Web site and encompassed demographics, personal and household income, an SCI severity measure, and an SCI community needs measure containing information on 13 SCI-related needs.

RESULTS: A total of 1,549 persons with SCI (traumatic lesion, n = 1,137; nontraumatic lesion, n = 412) across Canada completed the survey. Most critical needs for community integration were expressed by a substantial proportion of survey participants, but significantly more expressed and met needs were reported by persons with a traumatic than a nontraumatic lesion. Personal and environmental characteristics influenced the probability of expressing and meeting needs (eg, severity of injury and household income). Help and support to meet expressed needs were received from government agencies, community organizations, and friends or family.

CONCLUSION: Better assessment of expressed and met or unmet needs for services remains a challenge but will serve as a tool to optimize service delivery in the community. Environmental barriers to services, particularly the process of getting needs met and associated costs, remain an issue that requires a reconsideration of some aspects of access to services.

Keywords: SCI-related needs; community living; environmental barriers; income; nontraumatic spinal cord injury; spinal cord injury

References

  1. Disabil Rehabil. 2012;34(21):1820-6 - PubMed
  2. PLoS One. 2013 Aug 30;8(8):e72552 - PubMed
  3. Top Spinal Cord Inj Rehabil. 2014 Fall;20(4):249-64 - PubMed
  4. Clin Rehabil. 2005 Mar;19(2):200-8 - PubMed
  5. Can J Occup Ther. 2007;74 Spec No.:243-54 - PubMed
  6. Arch Phys Med Rehabil. 2007 Mar;88(3 Suppl 1):S62-70 - PubMed
  7. Spinal Cord. 2010 Jan;48(1):45-50 - PubMed
  8. Rehabil Psychol. 2009 Feb;54(1):1-15 - PubMed
  9. Spinal Cord. 2010 Jan;48(1):15-20 - PubMed
  10. BMJ Open. 2013 Feb 22;3(2):null - PubMed
  11. Work. 2007;29(2):145-54 - PubMed
  12. Am J Phys Med Rehabil. 2006 Apr;85(4):310-42 - PubMed
  13. Top Spinal Cord Inj Rehabil. 2012 Spring;18(2):122-5 - PubMed
  14. Arch Phys Med Rehabil. 2003 Oct;84(10):1417-25 - PubMed
  15. Spinal Cord. 2010 May;48(5):423-8 - PubMed
  16. Disabil Rehabil. 1999 May-Jun;21(5-6):250-7 - PubMed
  17. Psychol Health Med. 2011 Aug;16(4):463-74 - PubMed
  18. Disabil Rehabil. 2013 Jan;35(1):11-9 - PubMed
  19. BMJ Open. 2014 Feb 28;4(2):e004231 - PubMed
  20. Spinal Cord. 1999 Sep;37(9):624-33 - PubMed
  21. Psychol Rep. 1997 Aug;81(1):25-6 - PubMed
  22. Health Econ. 2011 May;20(5):582-99 - PubMed
  23. Clin Rehabil. 2001 Dec;15(6):600-6 - PubMed
  24. Spinal Cord. 2010 Jan;48(1):73-9 - PubMed
  25. Soc Sci Med. 2010 Nov;71(10):1882-9 - PubMed
  26. Top Spinal Cord Inj Rehabil. 2014 Winter;20(1):40-7 - PubMed
  27. Arch Phys Med Rehabil. 2014 Jan;95(1 Suppl):S6-16 - PubMed
  28. Spinal Cord. 2000 Jan;38(1):51-5 - PubMed
  29. Spinal Cord. 2005 May;43(5):311-9 - PubMed
  30. Spinal Cord. 2006 Feb;44(2):95-105 - PubMed

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