Display options
Cite
Parker LS, Grubs R. Ethical considerations regarding classroom use of personal genomic information. J Microbiol Biol Educ. 2014;15(2):191-6doi: 10.1128/jmbe.v15i2.856.
Parker, L. S., & Grubs, R. (2014). Ethical considerations regarding classroom use of personal genomic information. Journal of microbiology & biology education, 15(2), 191-6. https://doi.org/10.1128/jmbe.v15i2.856
Parker, Lisa S, and Grubs, Robin. "Ethical considerations regarding classroom use of personal genomic information." Journal of microbiology & biology education vol. 15,2 (2014): 191-6. doi: https://doi.org/10.1128/jmbe.v15i2.856
Parker LS, Grubs R. Ethical considerations regarding classroom use of personal genomic information. J Microbiol Biol Educ. 2014 Dec 15;15(2):191-6. doi: 10.1128/jmbe.v15i2.856. eCollection 2014 Dec. PMID: 25574277; PMCID: PMC4278476.
Copy Download .nbib Format: NLM
Share it on

J Microbiol Biol Educ. 2014 Dec 15;15(2):191-6. doi: 10.1128/jmbe.v15i2.856. eCollection 2014 Dec.

Ethical considerations regarding classroom use of personal genomic information.

Journal of microbiology & biology education

Lisa S Parker, Robin Grubs

Affiliations

  1. Department of Human Genetics and Center for Bioethics and Health Law, University of Pittsburgh, Pittsburgh, PA 15260.
  2. Department of Human Genetics, University of Pittsburgh, Pittsburgh, PA 15260.

PMID: 25574277 PMCID: PMC4278476 DOI: 10.1128/jmbe.v15i2.856

Abstract

Rapidly decreasing costs of genetic technologies-especially next-generation sequencing-and intensifying need for a clinical workforce trained in genomic medicine have increased interest in having students use personal genomic information to motivate and enhance genomics education. Numerous ethical issues attend classroom/pedagogical use of students' personal genomic information, including their informed decision to participate, pressures to participate, privacy concerns, and psychosocial sequelae of learning genomic information. This paper addresses these issues, advocates explicit discussion of these issues to cultivate students' ethical reasoning skills, suggests ways to mitigate potential harms, and recommends collection of ethically relevant data regarding pedagogical use of personal genomic information.

References

  1. Am J Nurs. 2012 Oct;112(10):26-31, quiz 46, 32 - PubMed
  2. J Law Med Ethics. 2008 Summer;36(2):219-48, 211 - PubMed
  3. Am J Bioeth. 2012;12(4):32-40 - PubMed
  4. Genet Med. 2011 Jan;13(1):63-6 - PubMed
  5. Genome Med. 2013 Dec 30;5(12):113 - PubMed
  6. Genome Med. 2013 Mar 19;5(3):22 - PubMed
  7. Genet Med. 2011 May;13(5):400-8 - PubMed
  8. J Clin Ethics. 1993 Winter;4(4):287-94 - PubMed
  9. Oncol Nurs Forum. 2010 Sep;37(5):627-34 - PubMed
  10. J Genet Couns. 2009 Apr;18(2):147-59 - PubMed
  11. Genet Test Mol Biomarkers. 2013 Jun;17(6):446-52 - PubMed
  12. Biochem Mol Biol Educ. 2009 Jul;37(4):236-42 - PubMed
  13. Pac Symp Biocomput. 2012;:339-50 - PubMed
  14. Science. 2000 Aug 18;289(5482):1142-4 - PubMed
  15. Soc Work Health Care. 2008;47(4):416-37 - PubMed
  16. PLoS One. 2013 Jul 23;8(7):e68853 - PubMed
  17. J Genet Couns. 2011 Jun;20(3):231-40 - PubMed
  18. JAMA. 2010 Sep 22;304(12 ):1313-5 - PubMed
  19. Am J Clin Pathol. 2010 Jun;133(6):832-4 - PubMed

Publication Types