J Multidiscip Healthc. 2014 Dec 01;7:551-9. doi: 10.2147/JMDH.S73343. eCollection 2014.
User involvement as sharing knowledge - an extended perspective in patient education.
Journal of multidisciplinary healthcare
Anita Strøm, May Solveig Fagermoen
Affiliations
Affiliations
- Department of Masters and Continuing Education, Lovisenberg Diaconal University College, Oslo, Norway.
- Institute of Health and Society, University of Oslo, Oslo, Norway.
PMID: 25489248
PMCID: PMC4257108 DOI: 10.2147/JMDH.S73343
Abstract
BACKGROUND: Patient education is undergoing a paradigm shift in which the perspectives of patients are increasingly being incorporated into learning programs. Access to the users' experience is now considered a prerequisite for the development of quality health services, but how this user experience is incorporated is somewhat unclear. The inclusion of experiential knowledge and user involvement can challenge professional authority, roles, and working methods because knowledge sharing is different from persuasion, professional explanation, and consent. Dialogue and collaboration between professionals and users are essential to effective user involvement; however, little is understood about the characteristics of their collaboration.
OBJECTIVE: To describe characteristics of the collaboration between users and health professionals in developing, implementing, and evaluating patient education courses in hospitals.
DESIGN SETTING AND METHODS: A field study was conducted in three different hospitals. Data collection comprised open observations in meetings of 17 different collaboration groups with a total of 100 participants, and 24 interviews with users and professionals. The data analyses included both thematic and the Systematic Data Integration approach.
RESULTS: Two contrasting types of collaboration emerged from the analyses; knowledge sharing and information exchange. The first was characterized by mutual knowledge sharing, involvement, and reciprocal decision making. Characteristics of the second were the absence of dialogue, meagre exploration of the users' knowledge, and decisions usually made by the professionals.
CONCLUSION: Collaboration between users and health personnel takes place in an asymmetric relationship. Mutual knowledge sharing was found to be more than the exchange of information and consultation and also to be a prerequisite for shared decision making. In developing patient education when users are involved the health professionals have the power and responsibility to ensure that knowledge sharing with users takes place.
Keywords: knowledge sharing; patient education; professional–patient relations; user involvement
References
- Acta Psychiatr Scand. 2003 Jun;107(6):410-4 - PubMed
- Patient Educ Couns. 2005 Apr;57(1):115-21 - PubMed
- J Psychiatr Ment Health Nurs. 2008 Jun;15(5):365-73 - PubMed
- Patient Educ Couns. 2005 May;57(2):153-7 - PubMed
- Nurs Inq. 2011 Jun;18(2):94-101 - PubMed
- J Psychiatr Ment Health Nurs. 2013 Dec;20(10):932-42 - PubMed
- Health Expect. 2013 Sep;16(3):266-76 - PubMed
- Health Expect. 2009 Sep;12 (3):275-87 - PubMed
- Soc Sci Med. 2007 Mar;64(6):1297-310 - PubMed
- Patient Educ Couns. 2010 Mar;78(3):350-6 - PubMed
- Cochrane Database Syst Rev. 2006 Jul 19;(3):CD004563 - PubMed
- BMJ. 2002 Nov 30;325(7375):1263 - PubMed
- Patient Educ Couns. 2007 Apr;66(1):13-20 - PubMed
- Eur J Oncol Nurs. 2003 Dec;7(4):242-52 - PubMed
- Res Theory Nurs Pract. 2008;22(1):38-55 - PubMed
- Soc Sci Med. 2004 May;58(10 ):1973-84 - PubMed
- N Z Med J. 2012 Jun 29;125(1357):76-87 - PubMed
- Health Policy. 2006 Apr;76(2):156-68 - PubMed
- BMJ. 2008 Feb 9;336(7639):313-7 - PubMed
- Health Expect. 2011 Jun;14 (2):220-3 - PubMed
- Scand J Caring Sci. 2013 Sep;27(3):724-32 - PubMed
Publication Types