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Crookes DM, Wang C, DeMairo KR, et al. Perceptions about participation in cancer clinical trials in New York state. J Community Support Oncol. 2015;13(2):62-72doi: 10.12788/jcso.0110.
Crookes, D. M., Wang, C., DeMairo, K. R., Killackey, M., LePere, J. C., McFarlane, A., Somayaji, D., Allen, P., Bily, L., Brundage, B. A., Canosa, R., Crean, D., & Jandorf, L. (2015). Perceptions about participation in cancer clinical trials in New York state. The Journal of community and supportive oncology, 13(2), 62-72. https://doi.org/10.12788/jcso.0110
Crookes, Danielle M, et al. "Perceptions about participation in cancer clinical trials in New York state." The Journal of community and supportive oncology vol. 13,2 (2015): 62-72. doi: https://doi.org/10.12788/jcso.0110
Crookes DM, Wang C, DeMairo KR, Killackey M, LePere JC, McFarlane A, Somayaji D, Allen P, Bily L, Brundage BA, Canosa R, Crean D, Jandorf L. Perceptions about participation in cancer clinical trials in New York state. J Community Support Oncol. 2015 Feb;13(2):62-72. doi: 10.12788/jcso.0110. PMID: 25866985.
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J Community Support Oncol. 2015 Feb;13(2):62-72. doi: 10.12788/jcso.0110.

Perceptions about participation in cancer clinical trials in New York state.

The Journal of community and supportive oncology

Danielle M Crookes, Chang Wang, Karen R DeMairo, Maureen Killackey, Jean C LePere, Anita McFarlane, Darryl Somayaji, Patti Allen, Linda Bily, Beth Ann Brundage, Rosalie Canosa, Diana Crean, Lina Jandorf

Affiliations

  1. Department of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
  2. The Leukemia & Lymphoma Society, Hauppauge, New York, USA.
  3. Weill Cornell Medical College, New York, New York, USA.
  4. Memorial Sloan-Kettering Cancer Center, New York, New York, USA.
  5. The Greater New York City Affiliate of Susan G Komen for the Cure, New York, New York, USA.
  6. Roswell Park Cancer Institute, Buffalo, New York, USA.
  7. American Cancer Society, Manasquan, New Jersey, USA.
  8. Stony Brook Cancer Center, Stony Brook University, Stony Brook, New York, New York, USA.
  9. Bassett Cancer Institute, Cooperstown, New York, USA.
  10. CancerCare, New York, New York, USA.
  11. CR Wood Cancer Center at Glens Falls Hospital, Glens Falls, New York, USA.
  12. Department of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York, New York, USA. [email protected].

PMID: 25866985 DOI: 10.12788/jcso.0110

Abstract

BACKGROUND: Clinical trials are valuable in advancing cancer care through the investigation of ways in which to better prevent, detect and diagnose, and/or treat cancer. Recruitment of adults into clinical trials has historically been low.

OBJECTIVE: To survey adult cancer patients who reside in New York state to better understand their participation in and attitudes about clinical trials.

METHODS: From January 2012-April 2013, we conducted a one-time survey about clinical trials in 8 cancer-treatment or cancer-patient support organizations in the state. Surveys were offered in person and online to adults with a past or current cancer diagnosis. Analysis was limited to adults who resided in the state and provided a self-reported status of previous participation in clinical trials.

RESULTS: Of the 1,832 participants who completed the survey, 1,475 were included in the analysis. Our sample represented all regions of the state. Most of the respondents (68.1%) had never participated in a clinical trial. Almost 32% said they had never received information about research studies. Most (84%) felt that patients should be asked to participate in clinical trials, but fewer (70%) were willing to be approached about participation.

LIMITATIONS: The sample is predominantly white and female and overrepresents breast and hematologic cancers.

CONCLUSIONS: Increased outreach coupled with a team approach to educate and enroll patients in clinical trials may be the necessary first steps to increase participation in trials and ensure a diverse sample of participants.

©2015 Frontline Medical Communications.

Keywords: barrier; cancer; clinical trial; cross-sectional survey; facilitator; recruitment

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