Display options
Cite
Black N, Burke L, Forrest CB, et al. Patient-reported outcomes: pathways to better health, better services, and better societies. Qual Life Res. 2015;25(5):1103-12doi: 10.1007/s11136-015-1168-3.
Black, N., Burke, L., Forrest, C. B., Sieberer, U. H., Ahmed, S., Valderas, J. M., Bartlett, S. J., & Alonso, J. (2016). Patient-reported outcomes: pathways to better health, better services, and better societies. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 25(5), 1103-12. https://doi.org/10.1007/s11136-015-1168-3
Black, N, et al. "Patient-reported outcomes: pathways to better health, better services, and better societies." Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation vol. 25,5 (2016): 1103-12. doi: https://doi.org/10.1007/s11136-015-1168-3
Black N, Burke L, Forrest CB, Sieberer UH, Ahmed S, Valderas JM, Bartlett SJ, Alonso J. Patient-reported outcomes: pathways to better health, better services, and better societies. Qual Life Res. 2016 May;25(5):1103-12. doi: 10.1007/s11136-015-1168-3. Epub 2015 Nov 13. PMID: 26563251.
Copy Download .nbib Format: NLM
Share it on

Qual Life Res. 2016 May;25(5):1103-12. doi: 10.1007/s11136-015-1168-3. Epub 2015 Nov 13.

Patient-reported outcomes: pathways to better health, better services, and better societies.

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

N Black, L Burke, C B Forrest, U H Ravens Sieberer, S Ahmed, J M Valderas, S J Bartlett, J Alonso

Affiliations

  1. Department of Health Services Research and Policy, London School of Hygiene & Tropical Medicine, London, WC1H 9SH, UK.
  2. LORA Group, LLC, Royal Oak, MD, USA.
  3. Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
  4. Department of Pediatrics, University of Pennsylvania School of Medicine, Philadelphia, PA, USA.
  5. Faculty of Medicine, McGill University, Montreal, QC, Canada.
  6. School of Physical and Occupational Therapy, University Health Center's Division of Clinical Epidemiology, Clinical and Health Informatics, Montreal, QC, Canada.
  7. Centre de recherche interdisciplinaire en réadaptation, Montreal, QC, Canada.
  8. Health Services & Policy Research, Exeter Collaboration for Academic Primary Care (APEx) (Person Centred Care), University of Exeter Medical School, University of Exeter, Exeter, UK.
  9. Faculty of Medicine, McGill University, Montreal, QC, Canada. [email protected].
  10. Health Services Research Unit, IMIM (Hospital del Mar Medical Research Institute), Barcelona, Spain.
  11. CIBER Epidemiología y Salud Pública (CIBERESP), Barcelona, Spain.
  12. Pompeu Fabra University (UPF), Barcelona, Spain.

PMID: 26563251 DOI: 10.1007/s11136-015-1168-3

Abstract

While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.

Keywords: Health evaluations; Health services; Patient-reported outcomes; Population monitoring

References

  1. BMJ Open. 2014 Jul 22;4(7):e005601 - PubMed
  2. BMJ. 2013 Jan 28;346:f167 - PubMed
  3. Int J Public Health. 2009 Sep;54 Suppl 2:160-6 - PubMed
  4. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):578-82 - PubMed
  5. Qual Life Res. 2009 Feb;18(1):115-23 - PubMed
  6. Int J Public Health. 2009 Sep;54 Suppl 2:151-9 - PubMed
  7. Med Care. 2013 Jun;51(6):517-23 - PubMed
  8. Qual Life Res. 2008 Mar;17(2):179-93 - PubMed
  9. BMJ Qual Saf. 2014 Jul;23(7):534-42 - PubMed
  10. Qual Life Res. 2008 Nov;17(9):1125-35 - PubMed
  11. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):602-6 - PubMed
  12. J Public Health (Oxf). 2014 Sep;36(3):497-503 - PubMed
  13. Value Health. 2013 Jun;16(4):459-60 - PubMed
  14. J Health Serv Res Policy. 2015 Jan;20(1):11-7 - PubMed
  15. N Engl J Med. 2014 Oct 2;371(14):1277-9 - PubMed
  16. BMJ Qual Saf. 2015 Mar;24(3):195-202 - PubMed
  17. Health Qual Life Outcomes. 2012 Mar 30;10:34 - PubMed
  18. Int J Public Health. 2010 Dec;55(6):525-6 - PubMed
  19. Lancet. 2011 Oct 22;378(9801):1515-25 - PubMed
  20. Med Care. 2015 Apr;53(4):310-6 - PubMed
  21. Milbank Q. 2014 Dec;92 (4):754-75 - PubMed
  22. Value Health. 2008 Jul-Aug;11(4):700-8 - PubMed
  23. Int J Public Health. 2009 Sep;54 Suppl 2:128-30 - PubMed
  24. BMC Health Serv Res. 2014 Feb 11;14:66 - PubMed
  25. J Clin Epidemiol. 2010 Jul;63(7):737-45 - PubMed
  26. Qual Life Res. 2004 Feb;13(1):35-44 - PubMed
  27. J Health Serv Res Policy. 2014 Apr;19(2):77-84 - PubMed
  28. Qual Life Res. 2009 Sep;18(7):873-80 - PubMed
  29. Health Aff (Millwood). 2014 Jul;33(7):1171-7 - PubMed

MeSH terms

Publication Types

Grant support