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J Child Health Care. 2016 Dec;20(4):428-436. doi: 10.1177/1367493516632616. Epub 2016 Jul 25.

'It might hurt, but you have to push through the pain': Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents.

Journal of child health care : for professionals working with children in the hospital and community

Douglas L Race, Joanie Sims-Gould, Lori B Tucker, Ciaran M Duffy, Debbie Ehrmann Feldman, Michele Gibbon, Kristin M Houghton, Jennifer N Stinson, Elizabeth Stringer, Shirley Ml Tse, Heather A McKay

Affiliations

  1. 1 University of British Columbia, Vancouver, Canada.
  2. 2 British Columbia Children's Hospital, Vancouver, Canada.
  3. 3 University of Ottawa, Ottawa, Canada.
  4. 4 Children's Hospital of Eastern Ontario, Ottawa, Canada.
  5. 5 Université de Montréal, Montréal, Canada.
  6. 6 The Hospital for Sick Children, Toronto, Canada.
  7. 7 University of Toronto, Toronto, Canada.
  8. 8 Dalhousie University, Halifax, Canada.

PMID: 26907570 DOI: 10.1177/1367493516632616

Abstract

Our primary objective was to gather perspectives of children diagnosed with juvenile idiopathic arthritis (JIA) and their parents as they relate to physical activity (PA) participation. To do so, we conducted a study on 23 children diagnosed with JIA and their parents ( N = 29). We used convenience sampling to recruit participants and qualitative method- logies (one-on-one semi-structured interviews). We adopted a five-step framework analysis to categorize data into themes. Children and their parents described factors that act to facilitate or hinder PA participation. Pain was the most commonly highlighted PA barrier described by children and their parents. However, children who were newly diagnosed with JIA and their parents were more likely to highlight pain as a barrier than were child/parent dyads where children had been previously diagnosed.

Keywords: Barriers and facilitators; health promotion; juvenile idiopathic arthritis; physical activity; qualitative approaches

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