Display options
Cite
Spruill IJ, Coleman BL, Powell-Young YM, et al. Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families. J Natl Black Nurses Assoc. 2014;25(2):23-30
Spruill, I. J., Coleman, B. L., Powell-Young, Y. M., Williams, T. H., & Magwood, G. (2014). Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families. Journal of National Black Nurses' Association : JNBNA, 25(2), 23-30.
Spruill, Ida J, et al. "Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families." Journal of National Black Nurses' Association : JNBNA vol. 25,2 (2014): 23-30.
Spruill IJ, Coleman BL, Powell-Young YM, Williams TH, Magwood G. Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families. J Natl Black Nurses Assoc. 2014 Dec;25(2):23-30. PMID: 27134343; PMCID: PMC4847537.
Copy Download .nbib Format: NLM
Share it on

J Natl Black Nurses Assoc. 2014 Dec;25(2):23-30.

Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families.

Journal of National Black Nurses' Association : JNBNA

Ida J Spruill, Bernice L Coleman, Yolanda M Powell-Young, Tiffany H Williams, Gayenell Magwood

Affiliations

  1. Medical University of South Carolina, College of Nursing, Charleston, SC.
  2. Nursing Research and Development, Nurse Practitioner, Heart Transplant and Mechanical Assist Device Programs, Heart Institute at Cedars Sinai Medical Center, Los Angeles, CA.
  3. Alcorn State University, School of Nursing, Natchez Campus, Natchez, MS.

PMID: 27134343 PMCID: PMC4847537

Abstract

Although the Family Health History (FHH) is the most cost-effective tool in the staratification of disense risk, it is not designed to collect information from non-biological family members (NBFM). Significant NBFM, defined as "fictive kin and othermothers," tend to play a major role in the transmission of culture, health promotion, and decision-making; yet, their influence cannot be captured using the standard FHH. Participants attending the National Black Nurses Association (NBNA) 2012 genetic workshop were divided into groups to role-play FHH. All participants (N = 50) indicated difficulties with the standard FHH, ranking collection of sensitive data as the number 1 challenge. Consequently, a new symbol was developed with support from NBNA genetics workshop participants. Having such a symbol afforts an apportunity for inclusion of all NBFM to help guide risk-specific recommendations for disense management, prevention, and health promotion of common chronic diseases. This report will describe the process, presentation, and adoption of the symbol.

Keywords: community mothers; culture; epigenetics; family history; nurses

References

  1. Cleve Clin J Med. 2012 May;79(5):331-6 - PubMed
  2. Health Soc Work. 2008 Nov;33(4):259-66 - PubMed
  3. J Aging Health. 2006 Dec;18(6):814-36 - PubMed
  4. J Nurs Scholarsh. 2014 Jul;46(4):235-44 - PubMed
  5. Am J Epidemiol. 2005 May 1;161(9):799-805 - PubMed
  6. Genet Med. 2006 Jul;8(7):448-50 - PubMed
  7. Genet Med. 2002 Jul-Aug;4(4):304-10 - PubMed
  8. Public Health Genomics. 2009;12(2):73-83 - PubMed
  9. JAMA. 2001 Feb 7;285(5):540-4 - PubMed
  10. Am Fam Physician. 2005 Aug 1;72(3):441-8 - PubMed
  11. J Nurs Scholarsh. 2013 Jun;45(2):151-9 - PubMed
  12. Fam Process. 1997 Dec;36(4):375-83 - PubMed
  13. J Natl Black Nurses Assoc. 2009 Dec;20(2):20-4 - PubMed
  14. J Obstet Gynaecol Can. 2010 Jul;32(7):663-72 - PubMed
  15. Am J Med Genet C Semin Med Genet. 2004 Feb 15;125C(1):50-65 - PubMed
  16. Med Clin North Am. 2005 Jul;89(4):721-38 - PubMed
  17. Clin Genet. 2000 Oct;58(4):241-9 - PubMed
  18. Fam Relat. 2013 Oct 1;62(4):609-624 - PubMed
  19. Annu Rev Public Health. 2010;31:69-87 1 p following 87 - PubMed
  20. J Genet Couns. 2008 Oct;17(5):424-33 - PubMed
  21. N Engl J Med. 2004 Nov 25;351(22):2333-6 - PubMed
  22. Genet Med. 2010 Dec;12(12):785-91 - PubMed
  23. J Am Med Inform Assoc. 2008 Nov-Dec;15(6):723-8 - PubMed
  24. J Genet Couns. 1995 Dec;4(4):267-79 - PubMed

Publication Types

Grant support