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Ammerlaan JW, Mulder OK, de Boer-Nijhof NC, et al. Building a Tailored, Patient-Guided, Web-Based Self-Management Intervention 'ReumaUitgedaagd!' for Adults With a Rheumatic Disease: Results of a Usability Study and Design for a Randomized Control Trail. JMIR Res Protoc. 2016;5(2):e113doi: 10.2196/resprot.5735.
Ammerlaan, J. W., Mulder, O. K., de Boer-Nijhof, N. C., Maat, B., Kruize, A. A., van Laar, J., van Os-Medendorp, H., & Geenen, R. (2016). Building a Tailored, Patient-Guided, Web-Based Self-Management Intervention 'ReumaUitgedaagd!' for Adults With a Rheumatic Disease: Results of a Usability Study and Design for a Randomized Control Trail. JMIR research protocols, 5(2), e113. https://doi.org/10.2196/resprot.5735
Ammerlaan, Judy W, et al. "Building a Tailored, Patient-Guided, Web-Based Self-Management Intervention 'ReumaUitgedaagd!' for Adults With a Rheumatic Disease: Results of a Usability Study and Design for a Randomized Control Trail." JMIR research protocols vol. 5,2 (2016): e113. doi: https://doi.org/10.2196/resprot.5735
Ammerlaan JW, Mulder OK, de Boer-Nijhof NC, Maat B, Kruize AA, van Laar J, van Os-Medendorp H, Geenen R. Building a Tailored, Patient-Guided, Web-Based Self-Management Intervention 'ReumaUitgedaagd!' for Adults With a Rheumatic Disease: Results of a Usability Study and Design for a Randomized Control Trail. JMIR Res Protoc. 2016 Jun 23;5(2):e113. doi: 10.2196/resprot.5735. PMID: 27339472; PMCID: PMC4937174.
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JMIR Res Protoc. 2016 Jun 23;5(2):e113. doi: 10.2196/resprot.5735.

Building a Tailored, Patient-Guided, Web-Based Self-Management Intervention 'ReumaUitgedaagd!' for Adults With a Rheumatic Disease: Results of a Usability Study and Design for a Randomized Control Trail.

JMIR research protocols

Judy W Ammerlaan, Olga K Mulder, Nienke C de Boer-Nijhof, Bertha Maat, Aike A Kruize, Jaap van Laar, Harmieke van Os-Medendorp, Rinie Geenen

Affiliations

  1. University Medical Center Utrecht, Department Rheumatology and Clinical Immunology, Utrecht, Netherlands. [email protected].

PMID: 27339472 PMCID: PMC4937174 DOI: 10.2196/resprot.5735

Abstract

BACKGROUND: The chronic nature of rheumatic diseases imposes daily challenges upon those affected and causes patients to make daily decisions about the way they self-manage their illness. Although there is attention to self-management and evidence for the desirability of tailored interventions to support people with a rheumatic disease, interventions based on individual needs and preferences are scarce.

OBJECTIVE: To provide a systematic and comprehensive description of the theoretical considerations for building a Web-based, expert, patient-guided, and tailored intervention for adult patients with a rheumatic disease. Also, to present the results of a usability study on the feasibility of this intervention, and its study design in order to measure the effectiveness.

METHODS: To fit the intervention closely to the autonomy, needs, and preferences of the individual patient, a research team comprising patient representatives, health professionals, Web technicians, and communication experts was formed. The research team followed the new guidance by the Medical Research Council (MRC) for developing and evaluating complex interventions as a guide for the design of the intervention.

RESULTS: Considerations from self-determination theory and a comprehensive assessment of preferences and needs in patients with a rheumatic disease guided the development of the Web-based intervention. The usability study showed that the intervention was useful, easy to use, and accepted and appreciated by the target group of patients. The planned randomized controlled trial is designed to be conducted among 120 adults with a rheumatic disease, who are assigned to the self-management intervention or a self-help control group. Both groups will be asked to formulate personal goals they want to achieve concerning their self-management. Progress toward the personal goal is the primary outcome measure of this study. Self-reported Web-based measures will be assessed before randomization at baseline, and 3 and 6 months after randomization. Also, feasibility and adherence to the Web-based self-management intervention as process outcomes will be evaluated.

CONCLUSION: By identifying the individual goals at the beginning of the intervention and customizing the intervention to the individual patient, we aim to improve the usefulness and effectiveness of the Web-based self-management intervention. If proven effective, ReumaUitgedaagd! Online will be implemented in the Netherlands.

Keywords: Web-based; intervention; personal goal; pilot study; randomized controlled trial; rheumatic diseases; self-management; tailored

References

  1. Health Educ Behav. 2014 Oct;41(1 Suppl):34S-42S - PubMed
  2. Psychol Rev. 1977 Mar;84(2):191-215 - PubMed
  3. Musculoskeletal Care. 2011 Dec;9(4):200-10 - PubMed
  4. Health Promot Pract. 2005 Apr;6(2):148-56 - PubMed
  5. Health Qual Life Outcomes. 2009 Mar 18;7:25 - PubMed
  6. Arch Phys Med Rehabil. 2002 Jun;83(6):771-5 - PubMed
  7. Patient Educ Couns. 2007 May;66(2):192-201 - PubMed
  8. Ann Behav Med. 2003 Aug;26(1):1-7 - PubMed
  9. Chronic Illn. 2008 Dec;4(4):247-56 - PubMed
  10. Arthritis Rheum. 2008 Jul 15;59(7):1009-17 - PubMed
  11. Int J Nurs Pract. 2002 Apr;8(2):106-15 - PubMed
  12. Int J Nurs Stud. 2013 May;50(5):587-92 - PubMed
  13. Ann Rheum Dis. 2015 Jun;74(6):954-62 - PubMed
  14. Int J Surg. 2012;10(1):28-55 - PubMed
  15. Patient Educ Couns. 2002 Oct -Nov;48(2):177-87 - PubMed
  16. Pediatr Rheumatol Online J. 2014 Mar 25;12 :10 - PubMed
  17. Arch Phys Med Rehabil. 2008 Apr;89(4):652-9 - PubMed
  18. Am Psychol. 2000 Jan;55(1):68-78 - PubMed
  19. Musculoskeletal Care. 2012 Mar;10(1):29-38 - PubMed
  20. Clin Ther. 2001 Jul;23(7):1080-98 - PubMed
  21. Patient Educ Couns. 2013 Jul;92(1):134-7 - PubMed
  22. Cochrane Database Syst Rev. 2014 Jan 15;(1):CD008963 - PubMed
  23. J Biomed Inform. 2010 Feb;43(1):159-72 - PubMed
  24. Age Ageing. 1999 May;28(3):275-81 - PubMed
  25. Behav Res Methods. 2007 May;39(2):175-91 - PubMed
  26. J Med Internet Res. 2011 Dec 05;13(4):e111 - PubMed
  27. JAMA. 2002 Nov 20;288(19):2469-75 - PubMed
  28. Ann Rheum Dis. 2010 Jun;69(6):955-63 - PubMed

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