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Phys Disabil. 2015;34(1):14-30. doi: 10.14434/pders.v34i1.13918.

School Performance and Disease Interference in Adolescents with Sickle Cell Disease.

Physical disabilities : education and related services

Lori E Crosby, Naomi E Joffe, Mary Kay Irwin, Heather Strong, James Peugh, Lisa Shook, Karen A Kalinyak, Monica J Mitchell

Affiliations

  1. Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
  2. Nationwide Children's Hospital.

PMID: 27547816 PMCID: PMC4991639 DOI: 10.14434/pders.v34i1.13918

Abstract

Sickle cell disease (SCD) results in neuropsychological complications that place adolescents at higher risk for limited educational achievement. A first step to developing effective educational interventions is to understand the impact of SCD on school performance. The current study assessed perceptions of school performance, SCD interference and acceptability of educational support strategies in adolescents with SCD. To identify potential risk factors, the relationship between school performance, SCD interference and demographics were also examined. Thirty adolescents aged 12 to 20 completed demographics and SCD school performance questionnaires. Approximately 37% of participants reported receiving special education services, but more than 60% reported that SCD interfered with their school performance. Females reported that SCD impacted their schooling more than males (

Keywords: adolescent health; chronic disease; health disabilities; school performance

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