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Support Care Cancer. 2017 Nov;25(11):3395-3406. doi: 10.1007/s00520-017-3758-9. Epub 2017 Jun 13.

Effectiveness of implementing a dyadic psychoeducational intervention for cancer patients and family caregivers.

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Marita G Titler, Moira A Visovatti, Clayton Shuman, Katrina R Ellis, Tanima Banerjee, Bonnie Dockham, Olga Yakusheva, Laurel Northouse

Affiliations

  1. Department of Systems, Populations and Leadership, University of Michigan School of Nursing, 400 North Ingalls Street, Room 4170, Ann Arbor, MI, 48109-5482, USA. [email protected].
  2. Department of Health Behavior and Biological Sciences, University of Michigan School of Nursing, 400 North Ingalls Street, Room 2185, Ann Arbor, MI, 48109-5482, USA.
  3. Department of Systems, Populations and Leadership, University of Michigan School of Nursing, 400 North Ingalls Street, Room 4170, Ann Arbor, MI, 48109-5482, USA.
  4. Gillings School of Public Health, Department of Health Behavior, University of North Carolina at Chapel Hill, 302C Rosenau Hall, Chapel Hill, NC, 27599-7440, USA.
  5. Data & Methods Hub, North Campus Research Complex, University of Michigan Institute for Healthcare Policy & Innovation, Building 10, Room No. A193, Ann Arbor, MI, 48109, USA.
  6. Cancer Support Community, 2010 Hogback Road, Suite 3, Ann Arbor, MI, 48105, USA.
  7. University of Michigan School of Social Work, 1080 South University, Ann Arbor, MI, 48109, USA.
  8. University of Michigan School of Nursing, 400 North Ingalls Street, Room 2160, Ann Arbor, MI, 48109-5482, USA.

PMID: 28612157 PMCID: PMC5610667 DOI: 10.1007/s00520-017-3758-9

Abstract

PURPOSE: This study examined the effectiveness, feasibility, and satisfaction with implementation of the FOCUS program in two US Cancer Support Community affiliates in Ohio and California as well as the cost to deliver the program. FOCUS is an evidence-based psychoeducational intervention for dyads (cancer patients and caregivers).

METHODS: A pre-post-intervention design was employed. Eleven, five-session Focus programs were delivered by licensed professionals in a small group format (three-four dyads/group) to 36 patient-caregiver dyads. An Implementation Training Manual, a FOCUS Intervention Protocol Manual, and weekly conference calls were used to foster implementation. Participants completed questionnaires prior to and following completion of each five-session FOCUS program to measure primary (emotional distress, quality of life) and secondary outcomes (benefits of illness, self-efficacy, and dyadic communication). Enrollment and retention rates and fidelity to FOCUS were used to measure feasibility. Cost estimates were based on time and median hourly wages. Repeated analysis of variance was used to analyze the effect of FOCUS on outcomes for dyads. Descriptive statistics were used to examine feasibility, satisfaction, and cost estimates.

RESULTS: FOCUS had positive effects on QOL (p = .014), emotional (p = .012), and functional (p = .049) well-being, emotional distress (p = .002), benefits of illness (p = .013), and self-efficacy (p = .001). Intervention fidelity was 85% with enrollment and retention rates of 71.4 and 90%, respectively. Participants were highly satisfied. Cost for oversight and delivery of the five-session FOCUS program was $168.00 per dyad.

CONCLUSIONS: FOCUS is an economic and effective intervention to decrease distress and improve the quality of life for dyads.

Keywords: Cancer; Caregivers; Costs; Dyadic; Implementation; Psychoeducational intervention

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