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BMC Geriatr. 2017 Nov 16;17(1):265. doi: 10.1186/s12877-017-0654-6.

Computer and telephone delivered interventions to support caregivers of people with dementia: a systematic review of research output and quality.

BMC geriatrics

Amy Waller, Sophie Dilworth, Elise Mansfield, Rob Sanson-Fisher

Affiliations

  1. Health Behaviour Research Collaborative, School of Medicine and Public Health, University of Newcastle, Callaghan, NSW, 2308, Australia. [email protected].
  2. Hunter Medical Research Institute, Newcastle, NSW, 2305, Australia. [email protected].
  3. Priority Research Centre for Health Behaviour, University of Newcastle, Callaghan, NSW, 2308, Australia. [email protected].
  4. Health Behaviour Research Collaborative, School of Medicine and Public Health, University of Newcastle, Callaghan, NSW, 2308, Australia.
  5. Hunter Medical Research Institute, Newcastle, NSW, 2305, Australia.
  6. Priority Research Centre for Health Behaviour, University of Newcastle, Callaghan, NSW, 2308, Australia.

PMID: 29145806 PMCID: PMC5691399 DOI: 10.1186/s12877-017-0654-6

Abstract

BACKGROUND: To assess the scope, volume and quality of research on the acceptability, utilisation and effectiveness of telephone- and computer-delivered interventions for caregivers of people living with dementia.

METHODS: Medline, EMBASE, CINAHL and Cochrane databases were searched (Jan 1990 - Dec 2016). Eligible papers were classified as data-based descriptive, measurement or intervention studies. Intervention studies were first categorised according to mode of delivery (e.g. telephone, computer); then assessed against the Effective Practice and Organisation of Care (EPOC) methodological criteria for research design. Impact on health-related outcomes; and the acceptability, feasibility and utilisation of interventions were also assessed.

RESULTS: The number of publications increased by 13% each year (p < 0.001). Half were descriptive studies (n = 92, 50%) describing caregiver views on acceptability, access or utilization of technology. The remainder (n = 89, 48%) reported on interventions designed to improve caregiver outcomes. Only 34 met EPOC design criteria. Interventions were delivered via computer (n = 10), multiple modalities (n = 9) or telephone (n = 15). Interventions that incorporated various elements of psycho-education, peer support, skills training and health assessments led to improvements in caregiver wellbeing. While largely acceptable, utilisation of computer-based interventions was variable, with use often decreasing over time.

CONCLUSION: Interventions delivered via telephone and computer have the potential to augment existing dementia care. High-quality trials are required to make clear recommendations about the types of interventions that are most effective. Those that provide caregivers with: access to practical strategies to manage care of the person with dementia and their own wellbeing, advice and support from peers and/or clinicians; and that target the dyad should be explored.

Keywords: Caregiver; Dementia; Internet; Technology; Telephone; eHealth

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