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Sabbagh S, Ronis T, White PH. Pediatric rheumatology: addressing the transition to adult-orientated health care. Open Access Rheumatol. 2018;10:83-95doi: 10.2147/OARRR.S138370.
Sabbagh, S., Ronis, T., & White, P. H. (2018). Pediatric rheumatology: addressing the transition to adult-orientated health care. Open access rheumatology : research and reviews, 1083-95. https://doi.org/10.2147/OARRR.S138370
Sabbagh, Sara, et al. "Pediatric rheumatology: addressing the transition to adult-orientated health care." Open access rheumatology : research and reviews vol. 10 (2018): 83-95. doi: https://doi.org/10.2147/OARRR.S138370
Sabbagh S, Ronis T, White PH. Pediatric rheumatology: addressing the transition to adult-orientated health care. Open Access Rheumatol. 2018 Jul 03;10:83-95. doi: 10.2147/OARRR.S138370. eCollection 2018. PMID: 30013406; PMCID: PMC6037274.
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Open Access Rheumatol. 2018 Jul 03;10:83-95. doi: 10.2147/OARRR.S138370. eCollection 2018.

Pediatric rheumatology: addressing the transition to adult-orientated health care.

Open access rheumatology : research and reviews

Sara Sabbagh, Tova Ronis, Patience H White

Affiliations

  1. Department of Rheumatology, Children's National Health System, Washington DC, USA.
  2. National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health, Bethesda, MD USA.
  3. Department of Pediatrics, George Washington University School of Medicine and Health Sciences, Washington DC, USA, [email protected].
  4. Department of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington DC, USA, [email protected].
  5. Department of Medicine, George Washington University School of Medicine and Health Sciences, Washington DC, USA, [email protected].

PMID: 30013406 PMCID: PMC6037274 DOI: 10.2147/OARRR.S138370

Abstract

The transition from pediatric to adult health care is often a challenging process due to multiple interwoven complexities, especially for children with chronic medical conditions. Health care transition (HCT) is a process of moving from a pediatric to an adult model of health care with or without a transfer to a new clinician. This paper focuses on what is known about HCT for youth and young adults (Y/YA) with rheumatic diseases within a larger context of HCT recommendations. HCT barriers for youth, families, and providers and current evidence for a structured HCT processes are reviewed. Practical advice is offered on how to approach transition for Y/YA, what tools are available to assist in a successful transition process, and what are the areas of future research that are needed to improve the HCT evidence base.

Keywords: health care transition; pediatric rheumatology; special health care needs; transition; transition readiness assessment

Conflict of interest statement

Disclosure The authors report no conflicts of interest in this work.

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