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Paulsen B, Johnsen R, Hadders H. Nurses' experience with relatives of patients receiving end-of-life care in nursing homes and at home: A questionnaire-based cross-sectional study. Nurs Open. 2018;5(3):431-441doi: 10.1002/nop2.155.
Paulsen, B., Johnsen, R., & Hadders, H. (2018). Nurses' experience with relatives of patients receiving end-of-life care in nursing homes and at home: A questionnaire-based cross-sectional study. Nursing open, 5(3), 431-441. https://doi.org/10.1002/nop2.155
Paulsen, Bård, et al. "Nurses' experience with relatives of patients receiving end-of-life care in nursing homes and at home: A questionnaire-based cross-sectional study." Nursing open vol. 5,3 (2018): 431-441. doi: https://doi.org/10.1002/nop2.155
Paulsen B, Johnsen R, Hadders H. Nurses' experience with relatives of patients receiving end-of-life care in nursing homes and at home: A questionnaire-based cross-sectional study. Nurs Open. 2018 Apr 19;5(3):431-441. doi: 10.1002/nop2.155. eCollection 2018 Jul. PMID: 30062037; PMCID: PMC6056440.
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Nurs Open. 2018 Apr 19;5(3):431-441. doi: 10.1002/nop2.155. eCollection 2018 Jul.

Nurses' experience with relatives of patients receiving end-of-life care in nursing homes and at home: A questionnaire-based cross-sectional study.

Nursing open

Bård Paulsen, Roar Johnsen, Hans Hadders

Affiliations

  1. Health service research SINTEF Technology and Society Trondheim Norway.
  2. Department of Public Health and Nursing Norwegian University of Science and Technology (NTNU) Trondheim Norway.

PMID: 30062037 PMCID: PMC6056440 DOI: 10.1002/nop2.155

Abstract

AIM: The aim of this study was to explore any differences between nurses working in nursing home and home-based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to consent.

DESIGN: An electronic questionnaire-based cross-sectional study.

METHOD: An electronically distributed survey to 884 nurses in long-term care in Norway in May 2014. A total of 399 nurses responded (45%), of which 197 worked in nursing homes and 202 in home-based care.

RESULTS: Nurses in home-based care, more often than their colleagues in nursing homes, experienced that relatives had difficulties in accepting that patients were dying. Nurses who often felt insecure about whether life extension was in consistency with patients' wishes and nurses who talked most about life-prolonging medical treatment in communication with relatives more often experienced that relatives being reluctant to accept a poor prognosis and disagreements between relatives in their role as proxy decision makers for the patient.

Keywords: awareness of dying; end‐of‐life care; home‐based care; nursing; nursing homes; relatives

References

  1. Int J Palliat Nurs. 2014 Jun;20(6):271-7 - PubMed
  2. J Clin Nurs. 2006 Sep;15(9):1158-69 - PubMed
  3. J Palliat Med. 2006 Dec;9(6):1376-87 - PubMed
  4. J Gerontol Nurs. 2007 Apr;33(4):32-41 - PubMed
  5. J Med Ethics. 2009 Nov;35(11):672-7 - PubMed
  6. J Am Geriatr Soc. 2007 Jun;55(6):846-56 - PubMed
  7. Open Nurs J. 2012;6:1-12 - PubMed
  8. J Adv Nurs. 2013 Dec;69(12):2654-64 - PubMed
  9. Eur J Oncol Nurs. 2014 Apr;18(2):159-66 - PubMed
  10. Scand J Prim Health Care. 2017 Dec;35(4):344-351 - PubMed
  11. J Clin Nurs. 2009 Jan;18(2):163-73 - PubMed
  12. BMC Med Ethics. 2016 Jan 14;17:5 - PubMed
  13. Nurs Inq. 2008 Jun;15(2):106-15 - PubMed
  14. Commun Med. 2005;2(1):21-34 - PubMed
  15. J Nurs Scholarsh. 2000;32(3):251-8 - PubMed
  16. Palliat Med. 2017 Dec;31(10):964-974 - PubMed
  17. BMJ. 2002 Apr 13;324(7342):905-7 - PubMed
  18. Sociol Health Illn. 2005 Nov;27(7):993-1013 - PubMed
  19. Eur J Oncol Nurs. 2011 Dec;15(5):382-9 - PubMed
  20. J Nurs Scholarsh. 2001;33(2):147-51 - PubMed
  21. Am J Respir Crit Care Med. 2005 Apr 15;171(8):844-9 - PubMed
  22. Nurs Inq. 2007 Sep;14(3):224-32 - PubMed

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