Pediatric Health Med Ther. 2019 Jan 18;10:13-20. doi: 10.2147/PHMT.S173070. eCollection 2019.
A qualitative study of children's quality of life in the context of living with cleft lip and palate.
Pediatric health, medicine and therapeutics
Maryam Zeraatkar, Shabnam Ajami, Nasser Nadjmi, Seyad Aliakbar Faghihi, Ali Golkari
Affiliations
Affiliations
- Oral and Dental Disease Research Center, Department of Dental Public Health, Shiraz University of Medical Sciences, Shiraz, Iran, [email protected].
- Orthodontic Research Center, Department of Orthodontics, Shiraz University of Medical Sciences, Shiraz, Iran.
- Department of Cranio-Maxillofacial Surgery, Antwerp University Hospital, Antwerpen, Belgium.
- Clinical Educational Research Center, Shiraz University of Medical Sciences, Shiraz, Iran.
PMID: 30697094
PMCID: PMC6342148 DOI: 10.2147/PHMT.S173070
Abstract
BACKGROUND AND OBJECTIVE: Quality-of-life measures have been expanded to help in assessing the physical and psychosocial effects of oral health. Although, in the case of children undergoing oral surgery, the oro-facial status is generally measured by studies, it is essential to carry out investigations into the level of quality of life (QoL) after surgery to assess the actual effect of these surgeries on children's lives. Hence, our study is aimed at evaluating the QoL in these children.
METHODS: The study was performed using qualitative content analysis method. Eighteen caregivers of 4-6 year old children with a history of unilateral cleft lip and palate participated in in-depth interviews about the children's experiences with different problems affecting their daily lives. The results were divided into codes, sub-categories and categories through an inductive process in which the researchers moved from the specific to the general.
RESULT: A number of problems were identified, particularly insufficient functional and socio-emotional well-being including, difficulty in eating and speaking, dento-facial problems, shame, anxiety, insufficient peer interaction and dissatisfaction with their own appearance.
CONCLUSION: The most critical problems derived from the participants' experiences were insufficient functional and socio-emotional well-being that contributed to the reduced QoL among these children. Long term multidisciplinary interventional strategies such as psycho-social supportive programs are required to improve the QoL of these children. These interventions should be considered from the early stages of treatment, or even early stages of diagnosis.
Keywords: children; cleft lip; cleft palate; quality of life
Conflict of interest statement
Disclosure The authors report no conflicts of interest in this work.
References
- Dent Update. 1999 Dec;26(10):438-43 - PubMed
- J Pediatr Health Care. 2000 Jan-Feb;14(1):13-9 - PubMed
- Br J Plast Surg. 2001 Apr;54(3):223-6 - PubMed
- Cleft Palate Craniofac J. 2001 Mar;38(2):126-33 - PubMed
- Community Dent Oral Epidemiol. 2001 Jun;29(3):175-82 - PubMed
- Cleft Palate Craniofac J. 2001 Jul;38(4):379-85 - PubMed
- Facial Plast Surg. 2002 Aug;18(3):197-203 - PubMed
- Bull World Health Organ. 2002;80(12):981-4 - PubMed
- Nurse Educ Today. 2004 Feb;24(2):105-12 - PubMed
- Cleft Palate Craniofac J. 2005 Jan;42(1):14-8 - PubMed
- Cleft Palate Craniofac J. 2005 Jan;42(1):25-32 - PubMed
- Cleft Palate Craniofac J. 2005 May;42(3):260-6 - PubMed
- Cleft Palate Craniofac J. 2005 May;42(3):314-7 - PubMed
- Eur J Orthod. 2005 Jun;27(3):274-85 - PubMed
- Cleft Palate Craniofac J. 2005 Jul;42(4):355-61 - PubMed
- Bull World Health Organ. 2005 Sep;83(9):661-9 - PubMed
- Cleft Palate Craniofac J. 1992 Jul;29(4):352-6 - PubMed
- J Laryngol Otol. 2006 Apr;120(4):276-81 - PubMed
- Cleft Palate Craniofac J. 2006 Sep;43(5):598-605 - PubMed
- Pediatrics. 2007 Aug;120(2):e283-90 - PubMed
- Cleft Palate Craniofac J. 1991 Jul;28(3):279-84 - PubMed
- Cleft Palate Craniofac J. 2009 Mar;46(2):124-35 - PubMed
- J Child Psychol Psychiatry. 2010 Jan;51(1):94-103 - PubMed
- Cleft Palate Craniofac J. 2011 Jan;48(1):66-81 - PubMed
- Cleft Palate Craniofac J. 2012 Jul;49(4):397-405 - PubMed
- Saudi Med J. 2011 Apr;32(4):390-3 - PubMed
- Semin Speech Lang. 2011 May;32(2):115-26 - PubMed
- World J Surg. 2012 Aug;36(8):1963-9 - PubMed
- Biomed Res Int. 2015;2015:510395 - PubMed
- Cleft Palate J. 1979 Apr;16(2):171-6 - PubMed
- Angle Orthod. 1984 Jan;54(1):18-35 - PubMed
- West J Nurs Res. 1993 Apr;15(2):263-6 - PubMed
- BMJ. 1993 May 29;306(6890):1440-4 - PubMed
- Scand J Plast Reconstr Surg Hand Surg. 1995 Dec;29(4):329-36 - PubMed
- Br J Plast Surg. 1997 Jan;50(1):1-9 - PubMed
- Cleft Palate Craniofac J. 1997 May;34(3):218-25 - PubMed
- Psychoanal Study Child. 1997;52:76-88 - PubMed
- Health Serv Res. 1998 Oct;33(4 Pt 2):1091-109 - PubMed
Publication Types