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Capps B, Chadwick R, Joly Y, et al. Statement on bioinformatics and capturing the benefits of genome sequencing for society. Hum Genomics. 2019;13(1):24doi: 10.1186/s40246-019-0208-4.
Capps, B., Chadwick, R., Joly, Y., Lysaght, T., Mills, C., Mulvihill, J. J., & Zwart, H. (2019). Statement on bioinformatics and capturing the benefits of genome sequencing for society. Human genomics, 13(1), 24. https://doi.org/10.1186/s40246-019-0208-4
Capps, Benjamin, et al. "Statement on bioinformatics and capturing the benefits of genome sequencing for society." Human genomics vol. 13,1 (2019): 24. doi: https://doi.org/10.1186/s40246-019-0208-4
Capps B, Chadwick R, Joly Y, Lysaght T, Mills C, Mulvihill JJ, Zwart H. Statement on bioinformatics and capturing the benefits of genome sequencing for society. Hum Genomics. 2019 May 29;13(1):24. doi: 10.1186/s40246-019-0208-4. PMID: 31142362; PMCID: PMC6542037.
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Hum Genomics. 2019 May 29;13(1):24. doi: 10.1186/s40246-019-0208-4.

Statement on bioinformatics and capturing the benefits of genome sequencing for society.

Human genomics

Benjamin Capps, Ruth Chadwick, Yann Joly, Tamra Lysaght, Catherine Mills, John J Mulvihill, Hub Zwart

Affiliations

  1. Department of Bioethics, Dalhousie University, 5849 University Avenue, CRC Building, Room C-312, PO Box 15000, Halifax, Nova Scotia, B3H 4R2, Canada. [email protected].
  2. Cardiff University, Cardiff, UK.
  3. McGill University, Montreal, Canada.
  4. National University of Singapore, Singapore, Singapore.
  5. Monash University, Melbourne, Australia.
  6. University of Oklahoma Health Sciences Center, Oklahoma City, USA.
  7. Erasmus University Rotterdam, Rotterdam, The Netherlands.

PMID: 31142362 PMCID: PMC6542037 DOI: 10.1186/s40246-019-0208-4

Abstract

The HUGO Committee on Ethics, Law and Society (CELS) undertook a Working Group exploration of the key ethical issues arising from genome sequencing in 2013. The Imagined Futures paper the group subsequently published proposed points to consider when applying genomic bioinformatics to data repositories used in genomic medicine and research ( http://www.hugo-international.org/Resources/Documents/CELS_Article-ImaginedFutures_2014.pdf ). Given the ever-increasing power to sequence the human genome rapidly and inexpensively-as well as trends toward "Big Data" and "Open Science"-we take this opportunity to update and refine the key findings of that paper.

Keywords: Benefit sharing; Bioinformatics; Genomics; Human Genome Organisation; Solidarity; The public good

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