Display options
Cite
Woodbury RB, Beans JA, Hiratsuka VY, et al. Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review. Front Genet. 2019;10:942doi: 10.3389/fgene.2019.00942.
Woodbury, R. B., Beans, J. A., Hiratsuka, V. Y., & Burke, W. (2019). Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review. Frontiers in genetics, 10942. https://doi.org/10.3389/fgene.2019.00942
Woodbury, R Brian, et al. "Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review." Frontiers in genetics vol. 10 (2019): 942. doi: https://doi.org/10.3389/fgene.2019.00942
Woodbury RB, Beans JA, Hiratsuka VY, Burke W. Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review. Front Genet. 2019 Oct 10;10:942. doi: 10.3389/fgene.2019.00942. eCollection 2019. PMID: 31649725; PMCID: PMC6796238.
Copy Download .nbib Format: NLM
Share it on

Front Genet. 2019 Oct 10;10:942. doi: 10.3389/fgene.2019.00942. eCollection 2019.

Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review.

Frontiers in genetics

R Brian Woodbury, Julie A Beans, Vanessa Y Hiratsuka, Wylie Burke

Affiliations

  1. Research Department, Southcentral Foundation, Anchorage, Alaska, United States.
  2. Department of Bioethics and Humanities, University of Washington, Seattle, WA, United States.

PMID: 31649725 PMCID: PMC6796238 DOI: 10.3389/fgene.2019.00942

[No abstract available.]

Copyright © 2019 Woodbury, Beans, Hiratsuka and Burke.

Keywords: Alaska native; American Indian; community engagement; community-level research governance; data management; data sharing; health research; indigenous people

References

  1. PLoS Comput Biol. 2015 Oct 22;11(10):e1004525 - PubMed
  2. Jurimetrics. 2002 Winter;42(2):165-86 - PubMed
  3. J Empir Res Hum Res Ethics. 2016 Apr;11(2):191-8 - PubMed
  4. Genet Med. 2014 Nov;16(11):820-6 - PubMed
  5. J Rural Health. 2013 Winter;29(1):55-60 - PubMed
  6. Am J Public Health. 2013 Dec;103(12):2152-9 - PubMed
  7. Environ Health Perspect. 2012 Jan;120(1):6-10 - PubMed
  8. Nurse Res. 2014 Jul;21(6):39-43 - PubMed
  9. Can J Public Health. 2012 Jan-Feb;103(1):19-22 - PubMed
  10. Jurimetrics. 2002 Winter;42(2):149-57 - PubMed
  11. J Empir Res Hum Res Ethics. 2015 Oct;10(4):368-79 - PubMed
  12. Am J Public Health. 2006 Apr;96(4):596-9 - PubMed
  13. J Cancer Educ. 2018 Feb;33(1):44-51 - PubMed
  14. Int J Circumpolar Health. 1998;57 Suppl 1:38-40 - PubMed
  15. J Gen Intern Med. 2006 Jun;21(6):648-51 - PubMed
  16. BMC Med Res Methodol. 2013 Mar 23;13:48 - PubMed
  17. Int J Evid Based Healthc. 2015 Sep;13(3):141-6 - PubMed
  18. Int J Environ Res Public Health. 2017 Oct 31;14(11): - PubMed
  19. N Engl J Med. 2010 Jul 15;363(3):204-7 - PubMed
  20. Environ Health Insights. 2014 May 08;8:15-25 - PubMed
  21. J Community Health. 2012 Jun;37(3):701-5 - PubMed
  22. Nurs Inq. 2012 Jun;19(2):116-27 - PubMed
  23. Int J Circumpolar Health. 2013 Apr 16;72:20607 - PubMed
  24. Diabetes Care. 2013 Jul;36(7):2027-34 - PubMed
  25. Community Genet. 2006;9(3):153-60 - PubMed
  26. Qual Health Res. 2016 Nov;26(13):1862-1877 - PubMed
  27. Int J Circumpolar Health. 2007 Feb;66(1):19-30 - PubMed
  28. Healthc Manage Forum. 2017 Mar;30(2):117-122 - PubMed
  29. Int J Circumpolar Health. 2013 Aug 05;72:null - PubMed
  30. J Empir Res Hum Res Ethics. 2016 Apr;11(2):91-6 - PubMed
  31. J Aging Health. 2004 Nov;16(5 Suppl):58S-77S - PubMed
  32. Prog Community Health Partnersh. 2007 Winter;1(4):321-6 - PubMed
  33. Int J Circumpolar Health. 2011 Sep;70(4):363-72 - PubMed
  34. Implement Sci. 2010 Sep 20;5:69 - PubMed
  35. Sci Eng Ethics. 2006 Jul;12(3):491-507 - PubMed
  36. Int J Circumpolar Health. 2012 May 22;71:18642 - PubMed
  37. J Agromedicine. 2009;14(2):90-6 - PubMed
  38. Soc Sci (Basel). 2019 Apr;8(4):null - PubMed
  39. J Cancer Educ. 2005 Spring;20(1 Suppl):52-7 - PubMed
  40. Health Educ Behav. 2006 Apr;33(2):130-47 - PubMed
  41. Prog Community Health Partnersh. 2012 Summer;6(2):131-9 - PubMed
  42. J Consult Clin Psychol. 1996 Oct;64(5):856-60 - PubMed
  43. Am J Hum Genet. 1998 Sep;63(3):696-702 - PubMed
  44. Can J Public Health. 1998 Mar-Apr;89(2):105-8 - PubMed
  45. Annu Rev Genomics Hum Genet. 2019 Aug 31;20:495-517 - PubMed
  46. J Law Med Ethics. 2010 Fall;38(3):684-96 - PubMed
  47. Am J Public Health. 2013 Dec;103(12):2146-52 - PubMed
  48. Am J Public Health. 2015 Jun;105(6):1161-7 - PubMed
  49. Am Indian Alsk Native Ment Health Res. 2018;25(1):3-18 - PubMed
  50. J Community Genet. 2019 Jul;10(3):435-446 - PubMed
  51. Int J Environ Res Public Health. 2019 Aug 18;16(16): - PubMed
  52. Can J Physiol Pharmacol. 1995 Jun;73(6):751-3 - PubMed

Publication Types

Grant support