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Chiu C, Bishop M, McDaniels B, et al. A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis. J Patient Exp. 2018;7(1):34-41doi: 10.1177/2374373518812078.
Chiu, C., Bishop, M., McDaniels, B., Kim, B. J., & Tiro, L. (2020). A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis. Journal of patient experience, 7(1), 34-41. https://doi.org/10.1177/2374373518812078
Chiu, Chungyi, et al. "A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis." Journal of patient experience vol. 7,1 (2020): 34-41. doi: https://doi.org/10.1177/2374373518812078
Chiu C, Bishop M, McDaniels B, Kim BJ, Tiro L. A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis. J Patient Exp. 2020 Feb;7(1):34-41. doi: 10.1177/2374373518812078. Epub 2018 Nov 21. PMID: 32128369; PMCID: PMC7036688.
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J Patient Exp. 2020 Feb;7(1):34-41. doi: 10.1177/2374373518812078. Epub 2018 Nov 21.

A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis.

Journal of patient experience

Chungyi Chiu, Malachy Bishop, Bradley McDaniels, Byung-Jin Kim, Lebogang Tiro

Affiliations

  1. Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign, Champaign, IL, USA.
  2. Department of Early Childhood, Special Education, and Rehabilitation Counseling, University of Kentucky, Lexington, KY, USA.

PMID: 32128369 PMCID: PMC7036688 DOI: 10.1177/2374373518812078

Abstract

BACKGROUND: Comprehensive and effective multiple sclerosis (MS) health care requires understanding of patients' needs, preferences, and priorities.

OBJECTIVE: To evaluate priorities of patients with MS for their MS care.

METHODS: Participants included 3003 Americans with MS recruited through the National MS Society and the North American Research Committee on Multiple Sclerosis patient registry. Participants completed a comprehensive questionnaire on aspects of their health-care experiences.

RESULTS: Participants identified the top 3 health-care priorities as (1) the affordability of MS health care, (2) ensuring that non-MS health-care providers have more education about MS and how it can interact with other conditions, and (3) access to an MS center or specialized MS clinic with MS health-care professionals together in one place. Participants receiving care in an MS center rated the quality and their satisfaction with care higher than those receiving care in other settings. Although having the opportunity to evaluate their health-care quality was important to the participants, only 36.4% had been provided the opportunity in the past year.

CONCLUSIONS: This study identifies health-care priorities and concerns for Americans with MS.

© The Author(s) 2018.

Keywords: health-care access; health-care delivery; multiple sclerosis; national survey

Conflict of interest statement

Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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