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Kingdon C, Giotas D, Nacul L, et al. Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS. Healthcare (Basel). 2020;8(3)doi: 10.3390/healthcare8030197.
Kingdon, C., Giotas, D., Nacul, L., & Lacerda, E. (2020). Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS. Healthcare (Basel, Switzerland), 8(3), . https://doi.org/10.3390/healthcare8030197
Kingdon, Caroline, et al. "Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS." Healthcare (Basel, Switzerland) vol. 8,3 (2020). doi: https://doi.org/10.3390/healthcare8030197
Kingdon C, Giotas D, Nacul L, Lacerda E. Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS. Healthcare (Basel). 2020 Jul 04;8(3). doi: 10.3390/healthcare8030197. PMID: 32635535; PMCID: PMC7551603.
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Healthcare (Basel). 2020 Jul 04;8(3). doi: 10.3390/healthcare8030197.

Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS.

Healthcare (Basel, Switzerland)

Caroline Kingdon, Dionysius Giotas, Luis Nacul, Eliana Lacerda

Affiliations

  1. Department of Clinical Research, London School of Hygiene & Tropical Medicine, Faculty of Infectious and Tropical Diseases, London WC1E 7HT, UK.

PMID: 32635535 PMCID: PMC7551603 DOI: 10.3390/healthcare8030197

Abstract

Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals, while some have become distanced from all statutory medical services. Paradoxically, it is often the most seriously ill and needy who are the most neglected by those responsible for their healthcare. Reasons for this include tensions around the complexity of making an accurate diagnosis in the absence of a biomarker, the bitter debate about the effectiveness of the few available treatments, and the very real stigma associated with the diagnosis. Illness severity often precludes attendance at healthcare facilities, and if an individual is well enough to be able to attend an appointment, the presentation will not be typical; by definition, patients who are severely affected are home-bound and often confined to bed. We argue that a holistic model, such as ''Compassion in Practice'', can help with planning appointments and caring for people severely affected by ME/CFS. We show how this can be used to frame meaningful interactions between the healthcare practitioners (HCPs) and the homebound patient.

Keywords: ME/CFS; bedbound; engagement; health encounters; housebound; severe ME/CFS; validation

Conflict of interest statement

The authors declare no conflict of interest.

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Grant support