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Clark L, Canary HE, McDougle K, et al. Family Sense-Making After a Down Syndrome Diagnosis. Qual Health Res. 2020;30(12):1783-1797doi: 10.1177/1049732320935836.
Clark, L., Canary, H. E., McDougle, K., Perkins, R., Tadesse, R., & Holton, A. E. (2020). Family Sense-Making After a Down Syndrome Diagnosis. Qualitative health research, 30(12), 1783-1797. https://doi.org/10.1177/1049732320935836
Clark, Lauren, et al. "Family Sense-Making After a Down Syndrome Diagnosis." Qualitative health research vol. 30,12 (2020): 1783-1797. doi: https://doi.org/10.1177/1049732320935836
Clark L, Canary HE, McDougle K, Perkins R, Tadesse R, Holton AE. Family Sense-Making After a Down Syndrome Diagnosis. Qual Health Res. 2020 Oct;30(12):1783-1797. doi: 10.1177/1049732320935836. Epub 2020 Jul 03. PMID: 32618226; PMCID: PMC7814853.
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Qual Health Res. 2020 Oct;30(12):1783-1797. doi: 10.1177/1049732320935836. Epub 2020 Jul 03.

Family Sense-Making After a Down Syndrome Diagnosis.

Qualitative health research

Lauren Clark, Heather E Canary, Kyle McDougle, Rebekah Perkins, Ruth Tadesse, Avery E Holton

Affiliations

  1. University of California, Los Angeles, California, USA.
  2. San Diego State University, San Diego, California, USA.
  3. University of Southern California, Los Angeles, California, USA.
  4. The University of Utah, Salt Lake City, Utah, USA.

PMID: 32618226 PMCID: PMC7814853 DOI: 10.1177/1049732320935836

Abstract

The script of parenting shifts when parents learn of their child's Down syndrome diagnosis. To build a theory of the diagnostic experience and early family sense-making process, we interviewed 33 parents and nine grandparents living in the United States who learned prenatally or neonatally of their child's diagnosis. The core category of

Keywords: Down syndrome diagnosis; United States; disability; doctor–patient communication; family coping; grounded theory; qualitative

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