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Healthcare (Basel). 2020 Jul 31;8(3). doi: 10.3390/healthcare8030248.

Evaluation of Carer Strain and Carer Coping with Medications for People with Dementia after Discharge: Results from the SMS Dementia Study.

Healthcare (Basel, Switzerland)

Remia Bruce, Wendy Murdoch, Ashley Kable, Kerrin Palazzi, Carolyn Hullick, Dimity Pond, Christopher Oldmeadow, Andrew Searles, Anne Fullerton, Samantha Fraser, Rod Ling, John Attia

Affiliations

  1. Hunter New England Local Health District, New Lambton Heights, NSW 2305, Australia.
  2. Faculty of Health and Medicine, University of Newcastle, Callaghan, NSW 2308, Australia.
  3. Hunter Medical Research Institute, Newcastle, NSW 2305, Australia.

PMID: 32751986 PMCID: PMC7551266 DOI: 10.3390/healthcare8030248

Abstract

This study reports carer strain and coping with medications for people with dementia with an unplanned admission to hospital, and it evaluates the impact of a safe medication intervention on carer coping and carer strain. This was a quasi-experimental pre/post-controlled trial that included a survey of carers about managing medications for people with dementia after discharge. For 88 carers who completed surveys, 33% were concerned about managing medications, and 40% reported difficulties with medication management, including resistive behaviours by people with dementia. Dose administration aids were used by 72% of carers; however, only 15% reported receiving a recent home medicines review by a community pharmacist. High carer strain was reported by 74% of carers. Carer comments described many issues that contributed to high carer stress, as well as their engagement in vigilant activities to maintain medication safety. Strategies that can contribute to carers managing medications and reducing their strain include an increased use of dose administration aids, increased provision of home medicines reviews, and increased education of health professionals to provide adequate support and education about managing medications.

Keywords: caregiver strain index; carer strain; dementia; dose administration aid; medication management; safe medication strategy

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