J Psychosoc Oncol. 2020 Nov-Dec;38(6):782-798. doi: 10.1080/07347332.2020.1796887. Epub 2020 Aug 12.
Cancer across the ages: a narrative review of caregiver burden for patients of all ages.
Journal of psychosocial oncology
Courtney C Junkins, Erin Kent, Kristin Litzelman, Margaret Bevans, Rachel S Cannady, Abby R Rosenberg
Affiliations
Affiliations
- Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, Washington, USA.
- Gillings School of Global Public Health, Department of Health Policy and Management, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
- Department of Human Development and Family Studies, University of Wisconsin-Madison, Madison, Wisconsin, USA.
- Office of Research on Women's Heath, National Institutes of Health, Bethesda, Maryland, USA.
- Cancer Control Department, American Cancer Society, Atlanta, Georgia, USA.
- Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington, USA.
- Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA.
PMID: 32781919
DOI: 10.1080/07347332.2020.1796887
Abstract
PROBLEM IDENTIFICATION: Approximately 2.8 million Americans care for an individual with cancer. Because the literature typically describes caregiving experiences within patient age-groups (e.g., pediatrics, geriatrics), the purpose of this narrative review was to describe common and unique burdens and distress among caregivers of cancer-patients of different ages.
LITERATURE SEARCH: We identified representative peer-reviewed manuscripts related to caregivers of pediatric, adolescent, young-, middle-, and late-adult oncology patients. We combined search terms "caregiver" and "cancer" with "burden," "distress," and/or age-related terms ("pediatric" or "geriatric"). Included studies focused on factors of caregiver-burden and distress.
DATA EVALUATION/SYNTHESIS: Universal cancer-caregiving experiences include negative impacts on work-productivity, finances, social-/family-dynamics, and physical/emotional health. Age-related life experiences shape outcomes; pediatric caregivers may have fewer financial resources, whereas concurrent comorbidities create challenges for geriatric caregivers.
CONCLUSIONS: Caregiving for cancer patients has universal, shared, and patient age-specific burdens.
IMPLICATIONS FOR PRACTICE: Supportive care based on patient-age may improve caregiver well-being.
Keywords: cancer; caregiver; geriatric; pediatric; psychosocial outcome; quality of life
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