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McKinney WT, Schaffhausen CR, Bruin MJ, et al. Development of a Patient-specific Search of Transplant Program Outcomes and Characteristics: Feedback From Kidney Transplant Patients. Transplant Direct. 2020;6(8):e585doi: 10.1097/TXD.0000000000001036.
McKinney, W. T., Schaffhausen, C. R., Bruin, M. J., Chu, S., Schladt, D., Matas, A., Snyder, J., Kasiske, B., & Israni, A. K. (2020). Development of a Patient-specific Search of Transplant Program Outcomes and Characteristics: Feedback From Kidney Transplant Patients. Transplantation direct, 6(8), e585. https://doi.org/10.1097/TXD.0000000000001036
McKinney, Warren T, et al. "Development of a Patient-specific Search of Transplant Program Outcomes and Characteristics: Feedback From Kidney Transplant Patients." Transplantation direct vol. 6,8 (2020): e585. doi: https://doi.org/10.1097/TXD.0000000000001036
McKinney WT, Schaffhausen CR, Bruin MJ, Chu S, Schladt D, Matas A, Snyder J, Kasiske B, Israni AK. Development of a Patient-specific Search of Transplant Program Outcomes and Characteristics: Feedback From Kidney Transplant Patients. Transplant Direct. 2020 Jul 17;6(8):e585. doi: 10.1097/TXD.0000000000001036. eCollection 2020 Aug. PMID: 32766433; PMCID: PMC7371071.
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Transplant Direct. 2020 Jul 17;6(8):e585. doi: 10.1097/TXD.0000000000001036. eCollection 2020 Aug.

Development of a Patient-specific Search of Transplant Program Outcomes and Characteristics: Feedback From Kidney Transplant Patients.

Transplantation direct

Warren T McKinney, Cory R Schaffhausen, Marilyn J Bruin, Sauman Chu, David Schladt, Arthur Matas, Jon Snyder, Bertram Kasiske, Ajay K Israni

Affiliations

  1. Hennepin Healthcare Research Institute, Minneapolis, MN.
  2. College of Design, University of Minnesota, Minneapolis, MN.
  3. Scientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, MN.
  4. Department of Surgery, University of Minnesota, Minneapolis, MN.
  5. Department of Medicine, University of Minnesota, Minneapolis, MN.
  6. Department of Epidemiology and Community Health, University of Minnesota, Minneapolis, MN.

PMID: 32766433 PMCID: PMC7371071 DOI: 10.1097/TXD.0000000000001036

Abstract

BACKGROUND: Patients face obstacles in finding a transplant program that meets their healthcare needs. Acceptance criteria and waiting times vary by region and program. The Scientific Registry of Transplant Recipients provides program-specific information, but it is unclear what patients and referring physicians need to know.

METHODS: We examined variability in program-specific characteristics that could influence access to transplantation. We also conducted 20 interviews and 16 focus groups with transplant candidates, recipients, and their family members. Participants were shown prototypes of a patient-specific search tool and evaluated its capacity to identify programs tailored to the needs of individual patients.

RESULTS: The distribution of recipient and donor characteristics that may impact access to transplantation, such as recipients on Medicaid, varied across programs (all with

CONCLUSIONS: Providing patient-specific tools is valued by patients and important to maximizing access to transplant.

Copyright © 2020 The Author(s). Transplantation Direct. Published by Wolters Kluwer Health, Inc.

Conflict of interest statement

The authors declare no conflicts of interest.

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