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Healthcare (Basel). 2020 Nov 01;8(4). doi: 10.3390/healthcare8040448.

The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy.

Healthcare (Basel, Switzerland)

Matteo Bolcato, Marianna Russo, Alessandro Feola, Bruno Della Pietra, Camilla Tettamanti, Alessandro Bonsignore, Rosagemma Ciliberti, Daniele Rodriguez, Anna Aprile

Affiliations

  1. Department of Molecular Medicine, University of Padua, 35121 Padua, Italy.
  2. Department of Experimental Medicine, University of Campania "Luigi Vanvitelli", 80138 Naples, Italy.
  3. Department of Health Sciences, Section of Legal and Forensic Medicine, University of Genova, 16126 Genova, Italy.
  4. Department of Health Sciences, Section of History of Medicine and Bioethics, University of Genova, 16126 Genova, Italy.

PMID: 33139649 PMCID: PMC7712670 DOI: 10.3390/healthcare8040448

Abstract

The motion of the Italian National Bioethics Committee entitled "Aggressive treatment or therapeutic obstinacy on young children with limited life expectancy" comprises a premise that rejects therapeutic obstinacy and makes 12 recommendations. Recommendation no. 1 states the general rules: it ascribes a cardinal role to a shared care plan, it supports pain management therapy and pain relief, it opposes ineffective and disproportionate clinical treatment and defensive medicine. The other recommendations are correlated to the enacting of a national law establishing clinical ethics committees in paediatric hospitals; participation of parents and their fiduciaries in the decision-making processes; recourse to courts only as extrema ratio in the event of irremediable disagreement between the medical team and the family members; accompaniment at the end of life also through continuous deep sedation combined with pain therapy; access to palliative care; the need to reinforce research on pain and suffering in children; clinical trials and research studies conducted in children; the training of doctors, healthcare personnel and psychologists, to support parents in emotional and practical terms; the facilitation of the closeness of parents to children in extremely precarious clinical conditions; the relevant role of the associations of parents of sick children. Comments are made, in particular, about the innovative recommendations respectively relating to the adoption of care planning, the establishment, by law, of clinical ethics committees in paediatric hospitals and the limitation of recourse to courts-only as

Keywords: Italian National Bioethics Committee; aggressive treatments; short life expectancy; therapeutic obstinacy; young children

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