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Manning M, MacFarlane A, Hickey A, et al. The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. Disabil Rehabil. 2020;1-13doi: 10.1080/09638288.2020.1863483.
Manning, M., MacFarlane, A., Hickey, A., Galvin, R., & Franklin, S. (2020). The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. Disability and rehabilitation, 1-13. https://doi.org/10.1080/09638288.2020.1863483
Manning, Molly, et al. "The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults." Disability and rehabilitation vol. (2020): 1-13. doi: https://doi.org/10.1080/09638288.2020.1863483
Manning M, MacFarlane A, Hickey A, Galvin R, Franklin S. The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. Disabil Rehabil. 2020 Dec 28;1-13. doi: 10.1080/09638288.2020.1863483. Epub 2020 Dec 28. PMID: 33356970.
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Disabil Rehabil. 2020 Dec 28;1-13. doi: 10.1080/09638288.2020.1863483. Epub 2020 Dec 28.

The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults.

Disability and rehabilitation

Molly Manning, Anne MacFarlane, Anne Hickey, Rose Galvin, Sue Franklin

Affiliations

  1. School of Allied Health, Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
  2. Graduate Entry Medical School (GEMS), Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
  3. Department of Psychology, Royal College of Surgeons in Ireland, Dublin, Ireland.
  4. Ageing Research Centre, Health Research Institute, University of Limerick, Limerick, Ireland.

PMID: 33356970 DOI: 10.1080/09638288.2020.1863483

Abstract

PURPOSE: This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA.

MATERIALS AND METHODS: This qualitative study was designed with input from a Public and Patient Involvement advisory group. We conducted in-depth, semi-structured interviews with 14 PWA. Data were analysed following principles of reflexive thematic analysis.

RESULTS: Support services and LWA spanned five themes: Inpatient care; Support in the community; Speech therapy; Mental health; and Aphasia education and training. Per the findings, all aspects of stroke care were affected and challenged by aphasia. Access to services and information was variable. PWA of working-age, their families and children need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery. Healthcare workers must be equipped with aphasia competency.

CONCLUSIONS: The results highlight a need for equitable, transparent, responsive access to services, information and stroke liaison support. The findings extend knowledge of the importance of stroke care for supporting working-aged adults and their families to live well in the context of aphasia.Implications for rehabilitationThere is a need for equitable, transparent access to a responsive integrated pathway of stroke care to support living well with aphasia.People with aphasia post-stroke and their families need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery.This includes flexible access to mental healthcare and speech and language therapy.In order to access relevant care, people with post-stroke aphasia need access to information and stroke liaison support.Training to improve aphasia competency is imperative for healthcare workers.

Keywords: Aphasia; health services research; language therapy; patient involvement; rehabilitation; stroke

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