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Nicholls EJ, Rhodes T, Egede SJ. Situating adherence to medicines: The embodied practices and hinterlands of HIV antiretrovirals. Sociol Health Illn. 2021;43(5):1085-1099doi: 10.1111/1467-9566.13270.
Nicholls, E. J., Rhodes, T., & Egede, S. J. (2021). Situating adherence to medicines: The embodied practices and hinterlands of HIV antiretrovirals. Sociology of health & illness, 43(5), 1085-1099. https://doi.org/10.1111/1467-9566.13270
Nicholls, Emily Jay, et al. "Situating adherence to medicines: The embodied practices and hinterlands of HIV antiretrovirals." Sociology of health & illness vol. 43,5 (2021): 1085-1099. doi: https://doi.org/10.1111/1467-9566.13270
Nicholls EJ, Rhodes T, Egede SJ. Situating adherence to medicines: The embodied practices and hinterlands of HIV antiretrovirals. Sociol Health Illn. 2021 Jun;43(5):1085-1099. doi: 10.1111/1467-9566.13270. Epub 2021 Mar 28. PMID: 33774846.
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Sociol Health Illn. 2021 Jun;43(5):1085-1099. doi: 10.1111/1467-9566.13270. Epub 2021 Mar 28.

Situating adherence to medicines: The embodied practices and hinterlands of HIV antiretrovirals.

Sociology of health & illness

Emily Jay Nicholls, Tim Rhodes, Siri Jonina Egede

Affiliations

  1. Department of Public Health, Environments and Society, London School of Hygiene and Tropical Medicine, London, UK.
  2. The National Institute for Health Research Health Protection Research Unit (NIHR HPRU) in Blood Borne and Sexually Transmitted Infections at University College London, London, UK.
  3. Centre for Social Research in Health, University of New South Wales, Sydney, New South Wales, Australia.

PMID: 33774846 DOI: 10.1111/1467-9566.13270

Abstract

Adherence to medicines tends to be envisaged as a matter of actors' reasoned actions, though there is increasing emphasis on situating adherence as a practice materialised in everyday routines. Drawing on the qualitative interview accounts of Black African women living with HIV in London, UK, we treat adherence to HIV medicines as not only situated in the practices of the immediate and everyday but also relating to a hinterland of historical and social relations. We move from accounts which situate adherence as an embodied matter of affect in the present, to accounts which locate adherence as a condition of precarity, which also trace to enactments of time and place in the past. Adherence is therefore envisaged as a multiple and fluid effect which is made-up in-the-now and in relation to a hinterland of practices which locate elsewhere.

© 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).

Keywords: HIV; adherence; antiretroviral drugs; hinterland; migration; women

References

  1. Anderson, J., & Doyal, L. (2004). Women from Africa living with HIV in London: A descriptive study. AIDS Care, 16(1), 95-105. - PubMed
  2. Bacchi, C., & Bohnham, J. (2016). Poststructural Interview Analysis: Politicizing ‘personhood’. In C. Bacchi, & S. Goodwin (Eds.), Poststructural Policy Analysis (pp. 113-121). Palgrave Macmillan. - PubMed
  3. Bangsberg, D. R. (2008). Preventing HIV antiretroviral resistance through better monitoring of treatment adherence. The Journal of Infectious Diseases, 197(s3), S272-S278. - PubMed
  4. Blue, S., Shove, E., Carmona, C., & Kelly, M. P. (2016). Theories of practice and public health: Understanding (un)healthy practices. Critical Public Health, 26(1), 36-50. - PubMed
  5. British HIV Association (2016) British HIV Association guidelines for the treatment of HIV-1-positive adults with antiretroviral therapy 2015 (2016 interim update). BHIVA. Retrieved from https://www.bhiva.org/file/RVYKzFwyxpgiI/treatment-guidelines-2016-interim-update.pdf (accessed 23 January 2020). - PubMed
  6. Butler, J. (2009). Frames of War: When Is Life Grievable?. Verso Books. - PubMed
  7. Callon, M., & Law, J. (2004). Introduction: Absence - presence, circulation, and encountering in complex space. Environment and Planning D: Society and Space, 22(1), 3-11. - PubMed
  8. Charmaz, K. C. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Sage Publications Ltd. - PubMed
  9. Cohen, M. S., Chen, Y. Q., McCauley, M., Gamble, T., Hosseinipour, M. C., Kumarasamy, N., Hakim, J. G., Kumwenda, J., Grinsztejn, B., Pilotto, J. H. S., Godbole, S. V., Chariyalertsak, S., Santos, B. R., Mayer, K. H., Hoffman, I. F., Eshleman, S. H., Piwowar-Manning, E., Cottle, L., Zhang, X. C., … Fleming, T. R. (2016). Antiretroviral therapy for the prevention of HIV-1 transmission. New England Journal of Medicine, 375(9), 830-839. - PubMed
  10. Cohen, M. S., Chen, Y. Q., McCauley, M., Gamble, T., Hosseinipour, M. C., Kumarasamy, N., Hakim, J. G., Kumwenda, J., Grinsztejn, B., Pilotto, J. H. S., Godbole, S. V., Mehendale, S., Chariyalertsak, S., Santos, B. R., Mayer, K. H., Hoffman, I. F., Eshleman, S. H., Piwowar-Manning, E., Wang, L., … Fleming, T. R. (2011). Prevention of HIV-1 infection with early antiretroviral therapy. New England Journal of Medicine, 365(6), 493-505. - PubMed
  11. Conrad, P. (1985). The meaning of medications: Another look at compliance. Social Science & Medicine, 20(1), 29-37. - PubMed
  12. de Laet, M., & Mol, A. (2000). The Zimbabwe bush pump: Mechanics of a fluid technology. Social Studies of Science, 30(2), 225-263. - PubMed
  13. Donovan, J. L., & Blake, D. R. (1992). Patient non-compliance: Deviance or reasoned decision-making? Social Science & Medicine, 34(5), 507-513. - PubMed
  14. Doyal, L., & Anderson, J. (2005). ‘My fear is to fall in love again…’ How HIV-positive African women survive in London. Social Science & Medicine, 60(8), 1729-1738. - PubMed
  15. Duff, C. (2014). Assemblages of Health: Deleuze’s Empiricism and the Ethology of Life. Springer. - PubMed
  16. Duff, C. (2016). Assemblages, territories, contexts. The International Journal on Drug Policy, 33, 15-20. - PubMed
  17. Eisinger, R. W., Dieffenbach, C. W., & Fauci, A. S. (2019). HIV viral load and transmissibility of HIV infection: Undetectable equals untransmittable. JAMA, 321(5), 451-452. - PubMed
  18. Fox, N., & Alldred, P. (2017). Sociology and the new materialism: Theory, research, action, 1st ed. Sage. - PubMed
  19. Frank, A. W. (2009). Why I wrote… The Wounded Storyteller: A recollection of life and ethics. Clinical Ethics, 4(2), 106-108. - PubMed
  20. Glendinning, E., Spiers, J., Smith, J. A., Anderson, J., Campbell, L. J., Cooper, V., & Horne, R. (2019). A Qualitative Study to Identify Perceptual Barriers to Antiretroviral Therapy (ART) Uptake and Adherence in HIV Positive People from UK Black African and Caribbean Communities. AIDS and Behavior, 23(9), 2514-2521. - PubMed
  21. Huyard, C., Haak, H., Derijks, L., & Lieverse, L. (2019). When patients’ invisible work becomes visible: Non-adherence and the routine task of pill-taking. Sociology of Health & Illness, 41(1), 5-19. - PubMed
  22. Latour, B. (2005). Reassembling the social: An introduction to actor-network-theory. Oxford University Press. - PubMed
  23. Law, J. (2004). After method: Mess in social science research. Routledge. - PubMed
  24. Lessard, D., Toupin, I., Engler, K., Lènàrt, A., & Lebouché, B. (2018). HIV-positive patients’ perceptions of antiretroviral therapy adherence in relation to subjective time: Imprinting, domino effects, and future shadowing. Journal of the International Association of Providers of AIDS Care (JIAPAC), 17, 232595821875920. - PubMed
  25. Lloyd, K. C. (2018). Centring ‘being undetectable’ as the new face of HIV: Transforming subjectivities via the discursive practices of HIV treatment as prevention. BioSocieties, 13(2), 470-493. - PubMed
  26. McCoy, L. (2009). Time, self and the medication day: A closer look at the everyday work of ‘adherence’. Sociology of Health & Illness, 31(1), 128-146. - PubMed
  27. Mills, E. (2017). Biopolitical precarity in the permeable body: The social lives of people, viruses and their medicines. Critical Public Health, 27(3), 350-361. - PubMed
  28. Mol, A. (2002). The Body Multiple: Ontology in Medical Practice. Duke University Press. - PubMed
  29. Mol, A. (2008). The logic of care: Health and the problem of patient choice, 1st ed. Routledge. - PubMed
  30. Mol, A., Moser, I., & Pols, J. (2010). Care: putting practice into theory. In A. Mol, I. Moser, & J. Pols (Eds.), Care in practice: On tinkering in clinics, homes and farms (pp. 7-26). Transcript Verlag. - PubMed
  31. National AIDS Trust (2014) HIV and Black African Communities in the UK. Policy Report. Available at: http://www.nat.org.uk/media/Files/Publications/NAT-African-Communities-Report-June-2014-FINAL.pdf - PubMed
  32. Nguyen, V. (2005). Antiretroviral globalism, biopolitics, and therapeutic citizenship. In A. Ong, & S. J. Collier (Eds.), Global assemblages: Technology, politics, and ethics as anthropological problems (pp. 124-144). Blackwell Publishing. - PubMed
  33. Paparini, S., & Rhodes, T. (2016). The biopolitics of engagement and the HIV cascade of care: A synthesis of the literature on patient citizenship and antiretroviral therapy. Critical Public Health, 26(5), 501-517. - PubMed
  34. Persson, A. (2004). Incorporating Pharmakon: HIV, medicine, and body shape change. Body & Society, 10(4), 45-67. - PubMed
  35. Persson, A., Newman, C. E., Mao, L., & de Wit, J. (2016). On the margins of pharmaceutical citizenship: Not taking HIV Medication in the “Treatment Revolution” Era. Medical Anthropology Quarterly, 30(3), 359-377. - PubMed
  36. Prevention Access Campaign (2016) Risk of sexual transmission of HIV from a person living with HIV who has an undetectable viral load: Messaging primer and consensus statement. Prevention Access Campaign. Retrieved from https://www.preventionaccess.org/consensus (accessed 6 July 2018). - PubMed
  37. Quesada, J., Hart, L. K., & Bourgois, P. (2011). Structural vulnerability and health: Latino Migrant Laborers in the United States. Medical Anthropology, 30(4), 339-362. - PubMed
  38. Rapley, T. J. (2001). The art(fulness) of open-ended interviewing: Some considerations on analysing interviews. Qualitative Research, 1(3), 303-323. - PubMed
  39. Rhodes, T., & Cusick, L. (2002). Accounting for unprotected sex: Stories of agency and acceptability. Social Science & Medicine, 55(2), 211-226. - PubMed
  40. Rhodes, T., Egede, S., Grenfell, P., Paparini, S., & Duff, C. (2019). The social life of HIV care: On the making of ‘care beyond the virus’. BioSocieties, 14(3), 321-344. - PubMed
  41. Riessman, C. (1993). Narrative analysis. Sage. - PubMed
  42. Roberts, K. J., & Mann, T. (2000). Barriers to antiretroviral medication adherence in HIV-infected women. AIDS Care, 12(4), 377-386. - PubMed
  43. Rosenfeld, D., & Weinberg, D. (2012). Domestic practice, situated contingency and adherence to medical directives: A call for research. Social Theory & Health, 10(1), 42-60. - PubMed
  44. Singleton, V., & Mee, S. (2017). Critical compassion: Affect, discretion and policy-care relations. The Sociological Review, 65(2_suppl), 130-149, https://doi.org/10.1177/0081176917710587. - PubMed
  45. Sophia Forum and Terrence Higgins Trust (2018). Women and HIV: Invisible No Longer. A national study of women’s experiences of HIV. Retrieved from: https://www.tht.org.uk/sites/default/files/2018-08/women-and-HIV_report_final_amended.pdf (accessed 9 August 2018). - PubMed
  46. Spiers, J., Smith, J. A., Poliquin, E., Anderson, J., & Horne, R. (2016). The experience of antiretroviral treatment for black West African Women who are HIV positive and living in London: An interpretative phenomenological analysis. AIDS and Behavior, 20(9), 2151-2163. - PubMed
  47. Tsing, A. L. (2015). The mushroom at the end of the world: On the possibility of life in capitalist ruins. Princeton University Press. - PubMed
  48. Whittle, H. J., Leddy, A. M., Shieh, J., Tien, P. C., Ofotokun, I., Adimora, A. A., Turan, J. M., Frongillo, E. A., Turan, B., & Weiser, S. D. (2020). Precarity and health: Theorizing the intersection of multiple material-need insecurities, stigma, and illness among women in the United States. Social Science & Medicine, 245, 1-11. - PubMed
  49. Young, I., Davis, M., Flowers, P., & McDaid, L. M. (2019). Navigating HIV citizenship: Identities, risks and biological citizenship in the treatment as prevention era. Health, Risk & Society, 21(1-2), 1-16. - PubMed

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