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Kwiatkowska J, Meyer-Szary J, Mazurek-Kula A, et al. The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension. Parental Anxiety and Attitudes. Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL). J Clin Med. 2021;10(8)doi: 10.3390/jcm10081640.
Kwiatkowska, J., Meyer-Szary, J., Mazurek-Kula, A., Zuk, M., Migdal, A., Kusa, J., Skiba, E., Zygielo, K., Przetocka, K., Kordon, Z., Banaszak, P., Michalczyk, A., Rzeznik-Bieniaszewska, A., Surmacz, R., Bobkowski, W., Wojcicka-Urbanska, B., Werner, B., Pluzanska, J., Ostrowska, K., Bazgier, M., & Kopec, G. (2021). The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension. Parental Anxiety and Attitudes. Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL). Journal of clinical medicine, 10(8), . https://doi.org/10.3390/jcm10081640
Kwiatkowska, Joanna, et al. "The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension. Parental Anxiety and Attitudes. Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL)." Journal of clinical medicine vol. 10,8 (2021). doi: https://doi.org/10.3390/jcm10081640
Kwiatkowska J, Meyer-Szary J, Mazurek-Kula A, Zuk M, Migdal A, Kusa J, Skiba E, Zygielo K, Przetocka K, Kordon Z, Banaszak P, Michalczyk A, Rzeznik-Bieniaszewska A, Surmacz R, Bobkowski W, Wojcicka-Urbanska B, Werner B, Pluzanska J, Ostrowska K, Bazgier M, Kopec G. The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension. Parental Anxiety and Attitudes. Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL). J Clin Med. 2021 Apr 12;10(8). doi: 10.3390/jcm10081640. PMID: 33921526; PMCID: PMC8069741.
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J Clin Med. 2021 Apr 12;10(8). doi: 10.3390/jcm10081640.

The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension. Parental Anxiety and Attitudes. Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL).

Journal of clinical medicine

Joanna Kwiatkowska, Jaroslaw Meyer-Szary, Anna Mazurek-Kula, Malgorzata Zuk, Anna Migdal, Jacek Kusa, Elzbieta Skiba, Karolina Zygielo, Kinga Przetocka, Zbigniew Kordon, Pawel Banaszak, Agata Michalczyk, Alina Rzeznik-Bieniaszewska, Rafal Surmacz, Waldemar Bobkowski, Barbara Wojcicka-Urbanska, Bozena Werner, Joanna Pluzanska, Katarzyna Ostrowska, Magdalena Bazgier, Grzegorz Kopec

Affiliations

  1. Department of Paediatric Cardiology and Congenital Heart Defect, Medical University of Gdansk, 80-210 Gdansk, Poland.
  2. Cardiology Department, Polish Mother's Memorial Hospital-Research Institute, 93-338 Lodz, Poland.
  3. The Children's Memorial Health Institute, 04-730 Warsaw, Poland.
  4. Regional Specialist Hospital-Research and Development Centre in Wroclaw, Paediatric Cardiology Department, 51-124 Wroclaw, Poland.
  5. Department of Paediatric Cardiology, Medical College, Jagiellonian University, 30-663 Krakow, Poland.
  6. Silesian Centre for Heart Diseases, Department of Congenital Heart Disease and Paediatric Cardiology, 41-800 Zabrze, Poland.
  7. Department of Paediatric Cardiology, Poznan University of Medical Sciences, 60-572 Poznan, Poland.
  8. Department of Paediatric Cardiology and General Paediatrics, Medical University of Warsaw, 02-091 Warsaw, Poland.
  9. Pulmonary Circulation Centre, Department of Cardiac and Vascular Diseases, Faculty of Medicine, Medical College Jagiellonian University, John Paul II Hospital in Krakow, u. Pradnicka 80, 31-202 Krakow, Poland.

PMID: 33921526 PMCID: PMC8069741 DOI: 10.3390/jcm10081640

Abstract

The COVID-19 pandemic has impacted healthcare systems worldwide. Little is known about the impact of the pandemic on medical and psycho-social aspects of children with rare diseases such as pulmonary arterial hypertension and their parents. The study is based on children registered in The Database of Pulmonary Hypertension in the Polish Population and a parent-reported survey deployed during the first 6 months of the pandemic. The questionnaire consisted of six question panels: demographic data, fear of COVID-19, General Anxiety Disorder-7 (GAD-7), social impact of pandemic, patients' medical status, and alarming symptoms (appearance or exacerbation). Out of 80 children registered, we collected 58 responses (72.5% response rate). Responders (parents) were mostly female (

Keywords: COVID-19; coronavirus; pandemic; pediatric registry; psychosocial; pulmonary hypertension

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