Display options
Share it on

Eur J Neurol. 2021 Aug;28(8):2461-2466. doi: 10.1111/ene.14933. Epub 2021 Jun 17.

Guidelines should be guidelines: Time to leave the terms "consensus" and "position" for other purposes.

European journal of neurology

Katina Aleksovska, Claudio L A Bassetti, Thomas Berger, Vanessa Carvalho, João Costa, Günther Deuschl, Kristian Steen Frederiksen, Joke Jaarsma, Teia Kobulashvili, Maurizio A Leone, Lucia Pavlakova, Michele Romoli, Luca Vignatelli

Affiliations

  1. European Academy of Neurology, Vienna, Austria.
  2. Department of Neurology, Ss. Cyril and Methodius University, Skopje, N. Macedonia.
  3. Neurology Department, Medical Faculty, University Hospital, Bern, Switzerland.
  4. Department of Neurology, Medical University of Vienna, Vienna, Austria.
  5. Matosinhos Local Health Unit, Department of Neurology, Hospital Pedro Hispano, Matosinhos, Portugal.
  6. Laboratory of Clinical Pharmacology and Therapeutics, Faculdade de Medicina, Universidade de Lisboa, Lisbon, Portugal.
  7. Institute of Molecular Medicine, Lisbon, Portugal.
  8. Department of Neurology, Christian Albrecht University, Kiel, Germany.
  9. Department of Neurology, Danish Dementia Research Center, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
  10. European Federation of Neurological Associations, Brussels, Belgium.
  11. Department of Neurology, Christian Doppler University Hospital, Paracelsus Medical University, affiliated partner of the European Reference Network EpiCARE, Salzburg, Austria.
  12. Neurology Unit, Department of Emergency and Critical Care, Fondazione IRCCS "Casa Sollievo della Sofferenza", San Giovanni Rotondo, Italy.
  13. Neurology Unit, Maurizio Bufalini Hospital, Cesena, Italy.
  14. Neurology Clinic, University of Perugia-S. Maria della Misericordia Hospital, Perugia, Italy.
  15. IRCCS Istituto delle Scienze Neurologiche di Bologna, Bologna, Italy.

PMID: 34022083 DOI: 10.1111/ene.14933

[No abstract available.]

References

  1. Consensus report, Institute of Medicine. Clinical practice guidelines we can trust. March 23, 2011. https://www.nap.edu/catalog/13058/clinical-practice-guidelines-we-can-trust. Accessed March 2, 2021. - PubMed
  2. Murad MH. Clinical practice guidelines: a primer on development and dissemination. Mayo Clin Proc. 2017;92:423-433. - PubMed
  3. Lugtenberg M, Burgers JS, Westert GP. Effects of evidence-based clinical practice guidelines on quality of care: a systematic review. Qual Saf Health Care. 2009;18:385-392. - PubMed
  4. Dufour JV, Bouvenot J, Ambrosi P, Fieschi D, Fieschi M. Textual guidelines versus computable guidelines: a comparative study in the framework of the PRESGUID project in order to appreciate the impact of guideline format on physician compliance. AMIA Annu Symp Proc. 2006;2006:219-223. - PubMed
  5. Akl EA, Meerpohl JJ, Elliott J, Kahale LA, Schünemann HJ, Living Systematic Review Network. Living systematic reviews: 4. Living guideline recommendations. J Clin Epidemiol. 2017;91:47-53. - PubMed
  6. Woolf SH, Grol R, Hutchinson A, Eccles M, Grimshaw J. Clinical guidelines: potential benefits, limitations, and harms of clinical guidelines. BMJ. 1999;318(7182):527-530. - PubMed
  7. Grol R, Dalhuijsen J, Thomas S, in ‘tVeld C, Rutten G, Mokkink H. Attributes of clinical guidelines that influence use of guidelines in general practice: observational study. Br Med J. 1998;317:858-861. - PubMed
  8. Council of Europe. Developing a methodology for drawing up guidelines on best medical practice. Recommendation Rec(2001)13 and explanatory memorandum. Strasbourg: Council of Europe Publishing; 2002. https://www.leitlinien.de/mdb/edocs/pdf/literatur/coe-rec-2001-13.pdf - PubMed
  9. https://www.efna.net/wp-content/uploads/2020/05/EFNA-Report_Patient-Inolvement-in-Neuroscience-Research.pdf. Accessed March 3, 2021. - PubMed
  10. Ferretti MT, Martinkova J, Biskup E, et al. Sex and gender differences in Alzheimer's disease: current challenges and implications for clinical practice: Position paper of the Dementia and Cognitive Disorders Panel of the European Academy of Neurology. Eur J Neurol. 2020;27:928-943. - PubMed
  11. von Oertzen TJ, Macerollo A, Leone MA, et al. EAN consensus statement for management of patients with neurological diseases during the COVID-19 pandemic. Eur J Neurol. 2021;28:7-14. - PubMed
  12. Mancuso M, Arnold M, Bersano A, et al. Monogenic cerebral small-vessel diseases: diagnosis and therapy. Consensus recommendations of the European Academy of Neurology. Eur J Neurol. 2020;27:909-927. - PubMed
  13. Narayanaswami P, Sanders DB, Wolfe G, et al. International consensus guidance for management of myasthenia gravis: 2020 update. Neurology. 2021;96:114-122. - PubMed
  14. Leone MA, Keindl M, Schapira AH, Deuschl G, Federico A. Practical recommendations for the process of proposing, planning and writing a neurological management guideline by EAN task forces. Eur J Neurol. 2015;22:1505-1510. - PubMed
  15. https://www.eanpages.org/2020/05/01/update-of-ean-guidance-for-guidelines/. Accessed March 3, 2021. - PubMed
  16. https://www.ean.org/research/ean-guidelines. Accessed March 3, 2021. - PubMed
  17. Djulbegovic B, Guyatt G. Evidence vs consensus in clinical practice guidelines. JAMA. 2019;322:725-726. - PubMed
  18. Djulbegovic B, Guyatt GH. Progress in evidence-based medicine: a quarter century on. Lancet. 2017;390(10092):415-423. - PubMed
  19. Frederiksen KS, Cooper C, Frisoni GB, et al. A European academy of neurology guideline on medical management issues in dementia. Eur J Neurol. 2020;27:1805-1820. - PubMed
  20. Guyatt GH, Schünemann HJ, Djulbegovic B, Akl EA. Guideline panels should not GRADE good practice statements. J Clin Epidemiol. 2015;68:597-600. - PubMed
  21. Guyatt GH, Alonso-Coello P, Schünemann HJ, et al. Guideline panels should seldom make good practice statements: guidance from the GRADE Working Group. J Clin Epidemiol. 2016;80:3-7. - PubMed
  22. (2009) Mosby's Medical Dictionary. 8th Edition ed: Elsevier - PubMed
  23. Jacobs C, Graham ID, Makarski J, et al. Clinical practice guidelines and consensus statements in oncology-an assessment of their methodological quality. PLoS ONE. 2014;9(10):e110469. - PubMed
  24. https://www.nice.org.uk/process/pmg6/chapter/the-scope. Accessed April 7, 2021. - PubMed
  25. https://www.agreetrust.org/wp-content/uploads/2013/06/AGREE_II_Users_Manual_and_23-item_Instrument_ENGLISH.pdf. Accessed April 7, 2021. - PubMed

MeSH terms

Publication Types