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Shaffer VA, Brodney S, Gavaruzzi T, et al. Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards. Med Decis Making. 2021;41(7):897-906doi: 10.1177/0272989X211011100.
Shaffer, V. A., Brodney, S., Gavaruzzi, T., Zisman-Ilani, Y., Munro, S., Smith, S. K., Thomas, E., Valentine, K. D., & Bekker, H. L. (2021). Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards. Medical decision making : an international journal of the Society for Medical Decision Making, 41(7), 897-906. https://doi.org/10.1177/0272989X211011100
Shaffer, Victoria A, et al. "Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards." Medical decision making : an international journal of the Society for Medical Decision Making vol. 41,7 (2021): 897-906. doi: https://doi.org/10.1177/0272989X211011100
Shaffer VA, Brodney S, Gavaruzzi T, Zisman-Ilani Y, Munro S, Smith SK, Thomas E, Valentine KD, Bekker HL. Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards. Med Decis Making. 2021 Oct;41(7):897-906. doi: 10.1177/0272989X211011100. Epub 2021 May 22. PMID: 34027739.
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Med Decis Making. 2021 Oct;41(7):897-906. doi: 10.1177/0272989X211011100. Epub 2021 May 22.

Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards.

Medical decision making : an international journal of the Society for Medical Decision Making

Victoria A Shaffer, Suzanne Brodney, Teresa Gavaruzzi, Yaara Zisman-Ilani, Sarah Munro, Sian K Smith, Elizabeth Thomas, Katherine D Valentine, Hilary L Bekker

Affiliations

  1. Department of Psychological Sciences, University of Missouri, Columbia, MO, USA.
  2. Division of Internal Medicine, Massachusetts General Hospital, Padova, Veneto, Italy.
  3. Department of Developmental Psychology and Socialization, Universita degli Studi di Padova Scuola di Psicologia, Padova, Veneto, Italy.
  4. Department of Social and Behavioral Sciences, Temple University, Philadelphia, PA, USA.
  5. Department of Obstetrics and Gynaecology, University of British Columbia, Vancouver, BC, Canada.
  6. Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia.
  7. Health Decision Sciences Center, Massachusetts General Hospital, Boston, MA, USA.
  8. Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.

PMID: 34027739 DOI: 10.1177/0272989X211011100

Abstract

BACKGROUND: This article evaluates the evidence for the inclusion of patient narratives in patient decision aids (PtDAs). We define patient narratives as stories, testimonials, or anecdotes that provide illustrative examples of the experiences of others that are relevant to the decision at hand.

METHOD: To evaluate the evidence for the effectiveness of narratives in PtDAs, we conducted a narrative scoping review of the literature from January 2013 through June 2019 to identify relevant literature published since the last International Patient Decision Aid Standards (IPDAS) update in 2013. We considered research articles that examined the impact of narratives on relevant outcomes or described relevant theoretical mechanisms.

RESULTS: The majority of the empirical work on narratives did not measure concepts that are typically found in the PtDA literature (e.g., decisional conflict). Yet, a few themes emerged from our review that can be applied to the PtDA context, including the impact of narratives on relevant outcomes (knowledge, behavior change, and psychological constructs), as well as several theoretical mechanisms about how and why narratives work that can be applied to the PtDA context.

CONCLUSION: Based on this evidence update, we suggest that there may be situations when narratives could enhance the effectiveness of PtDAs. The recent theoretical work on narratives has underscored the fact that narratives are a multifaceted construct and should no longer be considered a binary option (include narratives or not). However, the bottom line is that the evidence does not support a recommendation for narratives to be a necessary component of PtDAs.

Keywords: anecdotes; narratives; patient decision aids; patient stories; testimonials

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