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Indian J Palliat Care. 2021 Jan-Mar;27(1):23-30. doi: 10.4103/IJPC.IJPC_72_20. Epub 2021 Feb 17.

Seeking an Adjustment from the Unnatural to the Supernatural: The Experience of Losing a Child from Cancer in Colombia.

Indian journal of palliative care

Sonia Carreño-Moreno, Mauricio Arias-Rojas, Lorena Chaparro-Díaz

Affiliations

  1. Research Group Nursing Care for the Chronic Patient, Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia.
  2. Department of Vocational Training, Faculty of Nursing, Universidad de Antioquia, Antioquia, Colombia.

PMID: 34035613 PMCID: PMC8121221 DOI: 10.4103/IJPC.IJPC_72_20

Abstract

AIMS: The death of a child with cancer can be devastating for his or her parents. This study sought to understand the way in which the process of parental grief develops after the death of a child with cancer.

METHODS: The research used a grounded theory approach, in which 18 participants were enrolled including parents whose child died from cancer 5 months to 5 years before. In-depth interviews were conducted, which were analyzed using constant comparisons until theoretical saturation was reached.

RESULTS: Fifteen subcategories were identified and grouped into three categories that explain what the grieving process represents to the parents over time (a) crossing a desert, (b) dying while alive, and (c) coming back to life. From the emerging relationships among the categories, the core category "seeking adjustment from the unnatural to the supernatural" arises. The results show that grief begins from the moment of diagnosis until long after the child's death. For parents, it entails understanding the disruption in the natural course of life, going through indescribable pain, and being spiritually reconnected with their child.

CONCLUSIONS: These results enable nurses to design comprehensive interventions that meet the described needs of these parents.

Copyright: © 2021 Indian Journal of Palliative Care.

Keywords: Cancer; caregivers; child; grief; grounded theory

Conflict of interest statement

There are no conflicts of interest.

References

  1. JAMA Pediatr. 2013 Jun;167(6):537-43 - PubMed
  2. J Pain Symptom Manage. 2015 Jan;49(1):55-65 - PubMed
  3. J Pain Symptom Manage. 2017 Apr;53(4):767-775 - PubMed
  4. Dev Psychopathol. 2016 Aug;28(3):801-18 - PubMed
  5. Qual Health Res. 2017 Apr;27(5):649-664 - PubMed
  6. Support Care Cancer. 2014 May;22(5):1391-9 - PubMed
  7. Crit Care Nurse. 2015 Dec;35(6):46-55; quiz 56 - PubMed
  8. Child Adolesc Psychiatr Clin N Am. 2018 Oct;27(4):579-590 - PubMed
  9. Econ Hum Biol. 2013 Jul;11(3):371-81 - PubMed
  10. J Christ Nurs. 2016 Jan-Mar;33(1):22-5 - PubMed
  11. J Pediatr Nurs. 2016 Jan-Feb;31(1):73-80 - PubMed
  12. Jpn J Clin Oncol. 2014 Dec;44(12):1181-8 - PubMed
  13. Child Adolesc Psychiatr Clin N Am. 2018 Oct;27(4):527-537 - PubMed
  14. J Clin Oncol. 2015 Jul 10;33(20):2246-53 - PubMed
  15. J Pain Symptom Manage. 2014 Jun;47(6):1043-53 - PubMed
  16. J Palliat Med. 2017 Dec;20(12):1389-1394 - PubMed
  17. J Affect Disord. 2015 Jan 1;170:15-21 - PubMed
  18. J Pediatr Nurs. 2014 Nov-Dec;29(6):660-9 - PubMed
  19. Clin Psychol Rev. 2016 Mar;44:75-93 - PubMed
  20. Death Stud. 2015 Jan-Jun;39(1-5):111-7 - PubMed
  21. Anxiety Stress Coping. 2018 Jan;31(1):93-106 - PubMed
  22. J Fam Psychol. 2008 Apr;22(2):203-11 - PubMed
  23. Death Stud. 2016 Nov-Dec;40(10):607-617 - PubMed
  24. Eur J Oncol Nurs. 2016 Dec;25:40-45 - PubMed
  25. Pediatr Blood Cancer. 2016 Sep;63(9):1594-602 - PubMed

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