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Glob Qual Nurs Res. 2021 Jun 29;8:23333936211028184. doi: 10.1177/23333936211028184. eCollection 2021.

Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities.

Global qualitative nursing research

Elise J Matthews, Vivian Puplampu, Jan M Gelech

Affiliations

  1. University of Regina, Saskatoon, SK, Canada.
  2. University of Saskatchewan, Saskatoon, Canada.

PMID: 34263013 PMCID: PMC8246494 DOI: 10.1177/23333936211028184

Abstract

The stressors experienced by families caring for children and youth with developmental disabilities (DD) impact quality of life for all family members. Families employ creative practices to cope and thrive in the midst of such challenges. This study sought to understand the adaptive practices, tactics, and strategies engaged in by parents. We interviewed 39 parents of 46 children and youth with DD in Canada. Thematic analysis elucidated three categories of adaptations and twelve tactics and strategic actions at three ecological levels:

© The Author(s) 2021.

Keywords: Canada; adaptation; children; critical interpretivism; developmental disability; family nursing; health care access; parenting; resistance

Conflict of interest statement

Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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