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Kreutzer EP, Sauer S, Kriegsmann M, et al. Accuracy and Reliability of Internet Resources for Information on Monoclonal Gammopathy of Undetermined Significance-What Information Is out There for Our Patients?. Cancers (Basel). 2021;13(18)doi: 10.3390/cancers13184508.
Kreutzer, E. P., Sauer, S., Kriegsmann, M., Staemmler, H., Egerer, G., & Kriegsmann, K. (2021). Accuracy and Reliability of Internet Resources for Information on Monoclonal Gammopathy of Undetermined Significance-What Information Is out There for Our Patients?. Cancers, 13(18), . https://doi.org/10.3390/cancers13184508
Kreutzer, Emma Pauline, et al. "Accuracy and Reliability of Internet Resources for Information on Monoclonal Gammopathy of Undetermined Significance-What Information Is out There for Our Patients?." Cancers vol. 13,18 (2021). doi: https://doi.org/10.3390/cancers13184508
Kreutzer EP, Sauer S, Kriegsmann M, Staemmler H, Egerer G, Kriegsmann K. Accuracy and Reliability of Internet Resources for Information on Monoclonal Gammopathy of Undetermined Significance-What Information Is out There for Our Patients?. Cancers (Basel). 2021 Sep 07;13(18). doi: 10.3390/cancers13184508. PMID: 34572733; PMCID: PMC8465467.
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Cancers (Basel). 2021 Sep 07;13(18). doi: 10.3390/cancers13184508.

Accuracy and Reliability of Internet Resources for Information on Monoclonal Gammopathy of Undetermined Significance-What Information Is out There for Our Patients?.

Cancers

Emma Pauline Kreutzer, Sandra Sauer, Mark Kriegsmann, Henrike Staemmler, Gerlinde Egerer, Katharina Kriegsmann

Affiliations

  1. Department of Hematology, Oncology and Rheumatology, University Hospital Heidelberg, 69120 Heidelberg, Germany.
  2. Institute of Pathology, University Hospital Heidelberg, 69120 Heidelberg, Germany.

PMID: 34572733 PMCID: PMC8465467 DOI: 10.3390/cancers13184508

Abstract

BACKGROUND: Online information gathering can increase patients' engagement in decision-making. The quality of online resources available for monoclonal gammopathy of undetermined significance (MGUS) was evaluated.

METHODS: 900 websites from Google, Bing, Yahoo, and 150 YouTube videos were assessed.

RESULTS: The websites did not differ regarding their search rank or between the search engines. The median time since last update was 24 months. The 86 unique websites showed a medium to poor general quality (JAMA score 3/4, only 8.1% websites with a valid HON certificate). The patient- (user-) focused quality was poor (sum DISCERN score 27/80 points). The reading level was difficult (11th US school grade). The content level was very low (13/50 points). 12.8% of websites contained misleading/wrong facts. Websites provided by scientific/governmental organizations had a higher content level. For the 61 unique videos, the median time since upload was 34 months. The videos showed a medium general quality (HON Foundation score). The patient- (user-) focused quality was poor (sum DISCERN score 24 points). The content level was very low (6 points).

CONCLUSION: MGUS-relevant online sources showed a low quality that was provided on a high reading level. Incorporation of quality indices and regular review of online content is warranted.

Keywords: monoclonal gammopathy of undetermined significance (MGUS); online health information; patient education

References

  1. Blood. 2018 Jan 11;131(2):163-173 - PubMed
  2. Lupus. 2018 Oct;27(12):1911-1917 - PubMed
  3. JAMA. 2001 May 23-30;285(20):2612-21 - PubMed
  4. J Am Osteopath Assoc. 2008 Dec;108(12):699-711 - PubMed
  5. Can Fam Physician. 2014 May;60(5):407-8 - PubMed
  6. J Fluency Disord. 2021 Mar;67:105824 - PubMed
  7. J Clin Sleep Med. 2018 Oct 15;14(10):1717-1723 - PubMed
  8. J Oral Facial Pain Headache. 2017 Spring;31(2):147-151 - PubMed
  9. Pediatr Blood Cancer. 2019 Oct;66(10):e27931 - PubMed
  10. Int J Pediatr Otorhinolaryngol. 2017 Jul;98:1-3 - PubMed
  11. J Appl Psychol. 1948 Jun;32(3):221-33 - PubMed
  12. Am J Respir Crit Care Med. 2016 Jul 15;194(2):218-25 - PubMed
  13. Oral Surg Oral Med Oral Pathol Oral Radiol. 2018 Mar;125(3):215-222 - PubMed
  14. J Vasc Surg. 2012 Jul;56(1):21-6 - PubMed
  15. Oral Oncol. 2018 Jul;82:69-74 - PubMed
  16. Breast. 2014 Feb;23(1):33-7 - PubMed
  17. N Engl J Med. 2006 Mar 30;354(13):1362-9 - PubMed
  18. Stud Health Technol Inform. 1998;52 Pt 2:1163-6 - PubMed
  19. Health Promot Int. 2003 Dec;18(4):381-6 - PubMed
  20. Lancet Oncol. 2014 Nov;15(12):e538-48 - PubMed
  21. Int J Pediatr Otorhinolaryngol. 2013 Jun;77(6):894-7 - PubMed
  22. JAMA. 2003 May 14;289(18):2400-6 - PubMed
  23. J Med Internet Res. 2017 Jan 19;19(1):e9 - PubMed
  24. BMJ. 2000 Dec 16;321(7275):1511-5 - PubMed
  25. J Vestib Res. 2020;30(2):63-72 - PubMed
  26. Am Fam Physician. 2005 Aug 1;72(3):463-8 - PubMed
  27. BMJ. 2002 Mar 9;324(7337):577-81 - PubMed
  28. J Oral Pathol Med. 2016 Sep;45(8):617-20 - PubMed
  29. JAMA. 1997 Apr 16;277(15):1244-5 - PubMed
  30. J Epidemiol Community Health. 1999 Feb;53(2):105-11 - PubMed
  31. J Med Internet Res. 2003 Dec 19;5(4):e33 - PubMed
  32. J Bone Joint Surg Am. 2000 Nov;82(11):1540-3 - PubMed
  33. BMC Public Health. 2021 Jan 18;21(1):151 - PubMed
  34. Int J Med Inform. 2020 Jan;133:104000 - PubMed
  35. Spine (Phila Pa 1976). 2014 May 1;39(10):E645-9 - PubMed
  36. J Med Internet Res. 2012 Jun 13;14(3):e87 - PubMed

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