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Edalatfar M, Sadeghi-Naini M, Khayat Kashani HR, et al. A minimum data set for traumatic brain injuries in Iran. Chin J Traumatol. 2021;doi: 10.1016/j.cjtee.2021.09.007.
Edalatfar, M., Sadeghi-Naini, M., Khayat Kashani, H. R., Movahed, M., & Sharif-Alhoseini, M. (2021). A minimum data set for traumatic brain injuries in Iran. Chinese journal of traumatology = Zhonghua chuang shang za zhi, . https://doi.org/10.1016/j.cjtee.2021.09.007
Edalatfar, Maryam, et al. "A minimum data set for traumatic brain injuries in Iran." Chinese journal of traumatology = Zhonghua chuang shang za zhi vol. (2021). doi: https://doi.org/10.1016/j.cjtee.2021.09.007
Edalatfar M, Sadeghi-Naini M, Khayat Kashani HR, Movahed M, Sharif-Alhoseini M. A minimum data set for traumatic brain injuries in Iran. Chin J Traumatol. 2021 Sep 28; doi: 10.1016/j.cjtee.2021.09.007. Epub 2021 Sep 28. PMID: 34690039.
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Chin J Traumatol. 2021 Sep 28; doi: 10.1016/j.cjtee.2021.09.007. Epub 2021 Sep 28.

A minimum data set for traumatic brain injuries in Iran.

Chinese journal of traumatology = Zhonghua chuang shang za zhi

Maryam Edalatfar, Mohsen Sadeghi-Naini, Hamid Reza Khayat Kashani, Mitra Movahed, Mahdi Sharif-Alhoseini

Affiliations

  1. Department of Neurosurgery, Imam Hossein Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
  2. Department of Psychology, HELP University, Kuala Lumpur, Malaysia.
  3. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran. Electronic address: [email protected].

PMID: 34690039 DOI: 10.1016/j.cjtee.2021.09.007

Abstract

PURPOSE: Traumatic brain injury (TBI) is one of the major public health concerns worldwide. Developing a TBI registry could facilitate characterizing TBI, monitoring the quality of care, and quantifying the burden of TBI by collecting comparable and standardized epidemiological and clinical data. However, a national standard tool for data collection of the TBI registry has not been developed in Iran yet. This study aimed to develop a national minimum data set (MDS) for a hospital-based registry of patients suffering from TBI in Iran.

METHODS: The MDS was designed in two phases, including a literature review and a Delphi study with content validation by an expert panel. After the literature review, a comprehensive list of administrative and clinical items was obtained. Through a two-round e-Delphi approach conducted by invited experts with clinical and research experience in the field of TBI, the final data elements were selected.

RESULTS: An MDS of TBI was assigned to two parts: administrative part with 5 categories including 52 data elements, and clinical part with 9 categories including 130 data elements.

CONCLUSION: For the first time in Iran, we developed an MDS specified for TBI consisting of 182 data elements. The MDS would facilitate implementing a TBI's national level registry and providing essential, comparable, and standardized information.

Copyright © 2021 Chinese Medical Association. Production and hosting by Elsevier B.V. All rights reserved.

Keywords: Data systems; Registries; Traumatic brain injuries

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