Qual Life Res. 2021 Oct 18; doi: 10.1007/s11136-021-03011-z. Epub 2021 Oct 18.

Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers.

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Kara Schick-Makaroff, Richard Sawatzky, Lena Cuthbertson, Joakim Öhlén, Autumn Beemer, Dominique Duquette, Mehri Karimi-Dehkordi, Kelli I Stajduhar, Nitya Suryaprakash, Landa Terblanche, Angela C Wolff, S Robin Cohen

PMID: 34664161 DOI: 10.1007/s11136-021-03011-z

Abstract

PURPOSE: To support the use of quality of life (QOL) assessment tools for older adults, we developed knowledge translation (KT) resources tailored for four audiences: (1) older adults and their family caregivers (micro), (2) healthcare providers (micro), (3) healthcare managers and leaders (meso), and (4) government leaders and decision-makers (macro). Our objectives were to (1) describe knowledge gaps and resources and (2) develop corresponding tailored KT resources to support use of QOL assessment tools by each of the micro-, meso-, and macro-audiences.

METHODS: Data were collected in two phases through semi-structured interviews/focus groups with the four audiences in Canada. Data were analyzed using qualitative description analysis. KT resources were iteratively refined through formative evaluation.

RESULTS: Older adults and family caregivers (N = 12) wanted basic knowledge about what "QOL assessment" meant and how it could improve their care. Healthcare providers (N = 13) needed practical solutions on how to integrate QOL assessment tools in their practice. Healthcare managers and leaders (N = 14) desired information about using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in healthcare programs and quality improvement. Government leaders and decision-makers (N = 11) needed to know how to access, use, and interpret PROM and PREM information for decision-making purposes. Based on these insights and evidence-based sources, we developed KT resources to introduce QOL assessment through 8 infographic brochures, 1 whiteboard animation, 1 live-action video, and a webpage.

CONCLUSION: Our study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults .

© 2021. The Author(s).

Keywords: Family caregivers; Knowledge translation; Older adults; Patient-reported outcome measures; Quality of life assessment tools

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Publication Types

• Journal Article

Grant support

• CAT2018-17/canadian frailty network (cfn)