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Davari M, Sadeghi A, Gharibnaseri Z, et al. An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model. Am J Blood Res. 2021;11(5):520-527
Davari, M., Sadeghi, A., Gharibnaseri, Z., Ravanbod, R., Eshghi, P., & Zargaran, M. (2021). An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model. American journal of blood research, 11(5), 520-527.
Davari, Majid, et al. "An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model." American journal of blood research vol. 11,5 (2021): 520-527.
Davari M, Sadeghi A, Gharibnaseri Z, Ravanbod R, Eshghi P, Zargaran M. An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model. Am J Blood Res. 2021 Oct 15;11(5):520-527. eCollection 2021. PMID: 34824884; PMCID: PMC8610799.
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Am J Blood Res. 2021 Oct 15;11(5):520-527. eCollection 2021.

An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model.

American journal of blood research

Majid Davari, Abolfazl Sadeghi, Zahra Gharibnaseri, Roya Ravanbod, Peyman Eshghi, Marziyeh Zargaran

Affiliations

  1. Department of Pharmacoeconomics and Pharmaceutical Administration, Faculty of Pharmacy, Tehran University of Medical Sciences Tehran, Iran.
  2. Health Equity Research Centre, Tehran University of Medical Sciences Tehran.
  3. School of Medical Sciences, Tarbiat Modares University Tehran, Iran.
  4. Shahid Beheshti University of Medical Sciences Department of Pediatrics Tehran, Iran.

PMID: 34824884 PMCID: PMC8610799

Abstract

INTRODUCTION: Hemophilia A (HA) is an inherited deficiency in blood coagulation factors. Starting the treatment based merely on patients' hemorrhage feelings results in more than 63.6% mistakes in joint bleeding diagnosis. This study aimed to design a useful ambulatory service model for Patients With Severe Hemophilia A (PWSHA).

METHODS: This study was done in 3 steps. In step-I, the current service model to PWSHA in Tehran was evaluated. In step II, an ambulatory service model was proposed according to the existed gaps and their requirement. In step III, the model's acceptability was assessed from the perspective of clinicians, PWSHA, and healthcare policymakers.

RESULTS: There were 1660 PWSHA in Tehran in 2018. The average use of Factor VIII (FVIII) was 44814 IU in Iran. The yearly budget of FVIII in Tehran was 10,627,320 US$ in 2018. We proposed a home care model with five care centers in Tehran. Ten caregivers and three hematologists for each care center were suggested to cover all services per day. The extracted data indicated that the total service demand would be 39 for each center per day. The results of the questionnaires in all groups were supportive and cooperative.

CONCLUSION: The current service delivery model to PWSHA has significant economic and clinical defects. Implementing our model can significantly improve the efficiency of bleeding management in PWSHA. Most of the PWSHA, healthcare managers, and clinicians were satisfied with the proposed model.

AJBR Copyright © 2021.

Keywords: Haemophilia A; efficiency; factor VIII; health service model

Conflict of interest statement

None.

References

  1. Pediatrics. 2001 Dec;108(6):E105 - PubMed
  2. Haemophilia. 2013 Jan;19(1):e1-47 - PubMed
  3. Ann Intern Med. 1973 Feb;78(2):195-201 - PubMed
  4. Am J Public Health. 1972 Apr;62(4):530-5 - PubMed
  5. Haemophilia. 2012 May;18(3):332-8 - PubMed
  6. Haemophilia. 1998 Jul;4(4):498-501 - PubMed
  7. Blood. 2002 Oct 15;100(8):3034-6 - PubMed
  8. Thromb Haemost. 2001 Mar;85(3):560 - PubMed
  9. Hematology. 2016 Jun;21(5):300-10 - PubMed
  10. Haemophilia. 2001 Mar;7(2):198-206 - PubMed
  11. Ther Adv Hematol. 2017 Apr;8(4):153-156 - PubMed
  12. Blood. 2015 Aug 27;126(9):1078-85 - PubMed
  13. Haemophilia. 2009 Jan;15(1):348-51 - PubMed
  14. Transfus Apher Sci. 2008 Feb;38(1):49-55 - PubMed
  15. Clin Lab Haematol. 1979;1(1):13-27 - PubMed
  16. Semin Thromb Hemost. 2005 Nov;31(5):495-500 - PubMed
  17. Transfus Apher Sci. 2016 Feb;54(1):122-6 - PubMed
  18. Haemophilia. 2013 Sep;19(5):790-8 - PubMed
  19. ScientificWorldJournal. 2015;2015:596164 - PubMed

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