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Lam CKK, Bernal J, Finlayson J, et al. Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey. J Intellect Disabil. 2020;25(4):554-566doi: 10.1177/1744629520924141.
Lam, C. K. K., Bernal, J., Finlayson, J., Todd, S., Taggart, L., Boaz, A., & Tuffrey-Wijne, I. (2021). Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey. Journal of intellectual disabilities : JOID, 25(4), 554-566. https://doi.org/10.1177/1744629520924141
Lam, Claire Kar Kei, et al. "Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey." Journal of intellectual disabilities : JOID vol. 25,4 (2021): 554-566. doi: https://doi.org/10.1177/1744629520924141
Lam CKK, Bernal J, Finlayson J, Todd S, Taggart L, Boaz A, Tuffrey-Wijne I. Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey. J Intellect Disabil. 2021 Dec;25(4):554-566. doi: 10.1177/1744629520924141. Epub 2020 May 12. PMID: 32394781; PMCID: PMC8649423.
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J Intellect Disabil. 2021 Dec;25(4):554-566. doi: 10.1177/1744629520924141. Epub 2020 May 12.

Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey.

Journal of intellectual disabilities : JOID

Claire Kar Kei Lam, Jane Bernal, Janet Finlayson, Stuart Todd, Laurence Taggart, Annette Boaz, Irene Tuffrey-Wijne

Affiliations

  1. Kingston University and St George's, University of London, UK.
  2. University of South Wales, UK.
  3. Glasgow Caledonian University, UK.
  4. University of Ulster, UK.

PMID: 32394781 PMCID: PMC8649423 DOI: 10.1177/1744629520924141

Abstract

AIM: This article explores ways of maximising engagement of intellectual disability staff as research participants, research advisers and research implementers.

METHOD: The authors describe and reflect on a three-phased strategy in recruiting front-line staff (

RESULTS: Important elements in engaging participants were: involving stakeholders at all stages of the research process, which includes: building relationships with participating organisations; enlisting organisational management support at all levels; an attractive and well laid-out collection tool; a well-structured recruitment strategy; time and flexibility; and a varied and targeted dissemination strategy. However, the recruitment method had limitations, in particular around representativeness, bias and generalisability.

CONCLUSIONS: Staff in intellectual disability services can be enthusiastic and invaluable research participants. Active engagement between researchers, participating organisations and stakeholder groups is key to ensuring involvement of intellectual disability staff with research.

Keywords: difficult topic; intellectual disability staff; research methods; response rates; surveys

References

  1. J Appl Res Intellect Disabil. 2020 Sep;33(5):927-938 - PubMed
  2. J Environ Manage. 2012 Mar;95(1):56-65 - PubMed
  3. Res Dev Disabil. 2016 Feb-Mar;49-50:47-59 - PubMed
  4. J Appl Res Intellect Disabil. 2017 Nov;30(6):1007-1021 - PubMed
  5. J Appl Res Intellect Disabil. 2013 May;26(3):215-30 - PubMed
  6. J Appl Res Intellect Disabil. 2013 May;26(3):243-56 - PubMed
  7. Am J Pharm Educ. 2008 Apr 15;72(2):43 - PubMed
  8. Palliat Support Care. 2011 Jun;9(2):201-8 - PubMed
  9. J Res Nurs. 2019 Sep;24(6):366-382 - PubMed
  10. J Intellect Disabil Res. 2017 Aug;61(8):727-736 - PubMed
  11. J Intellect Disabil Res. 2015 Mar;59(3):226-37 - PubMed
  12. J Intellect Disabil Res. 2013 Oct;57(10):980-92 - PubMed
  13. BMJ Support Palliat Care. 2020 Dec;10(4):469-477 - PubMed

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