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Acad Pediatr. 2021 Nov 19; doi: 10.1016/j.acap.2021.11.009. Epub 2021 Nov 19.

Moving From Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs.

Academic pediatrics

Dennis Z Kuo, Meg Comeau, James M Perrin, Cara Coleman, Patience White, Carlos Lerner, Christopher J Stille

Affiliations

  1. Division of General Pediatrics, Division of Developmental Pediatrics & Rehabilitation, University at Buffalo (DZ Kuo), Buffalo, NY. Electronic address: [email protected].
  2. Boston University School of Social Work (M Comeau), Boston, Mass.
  3. MassGeneral Hospital for Children (JM Perrin), Boston, Mass.
  4. Family Voices (C Coleman), Lexington, Mass.
  5. George Washington University School of Medicine and Health Sciences, The National Alliance to Advance Adolescent Health (P White), Washington, DC.
  6. UCLA Mattel Children's Hospital/David Geffen School of Medicine at UCLA (C Lerner), Los Angeles, Calif.
  7. Section of General Academic Pediatrics, University of Colorado School of Medicine (C Stille), Aurora, Colo.

PMID: 34808384 DOI: 10.1016/j.acap.2021.11.009

Abstract

Children and youth with special health care needs (CYSHCN) use disproportionately more health care resources than non-CYSHCN, and their unique needs merit additional consideration. Spending on health care in the United States is heavily concentrated on acute illnesses through fee-for-service (FFS). Payment reform frameworks have focused on shifting away from FFS, addressing health outcomes and the experience of care while lowering costs, particularly for high resource utilizers. The focus of payment reform efforts to date has been on adults with chronic illnesses, with less priority given to investment in children's health and life course. Spending for children's health is also considered an investment in their growth and development with long-term outcomes at stake, so research questions should focus on where and how such spending should be targeted. This paper discusses high-priority research topics in the area of health care financing for CYSHCN in the context of what is currently known and important knowledge gaps related to investment for CYSHCN. It proceeds to describe 3 potential research projects that can address these topics, following a framework informed by the priority questions identified in a previous multistakeholder research agenda development process. We focus on 3 areas: benefits, payment models, and quality measures. Specific aims and hypotheses are offered, as well as suggestions for approaches and thoughts on potential implications.

Copyright © 2021 Academic Pediatric Association. Published by Elsevier Inc. All rights reserved.

Keywords: children and youth with special health care needs; health insurance; quality measures; research agenda; value-based payment reform

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