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Qual Health Res. 2021 Dec;31(14):2629-2640. doi: 10.1177/10497323211041590. Epub 2021 Oct 06.

"It Is a Full-time Job to Be Ill": Patient Work Involved in Attending Formal Diabetes Care Among Socially Vulnerable Danish Type 2 Diabetes Patients.

Qualitative health research

Sofie Á Rogvi, Ann Dorrit Guassora, Nina Tvistholm, Gitte Wind, Ulla Christensen

Affiliations

  1. Section of Social Medicine, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
  2. Section of General Practice, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
  3. Department of Nursing and Nutrition, University College Copenhagen, Copenhagen, Denmark.

PMID: 34612745 DOI: 10.1177/10497323211041590

Abstract

Previous research has shown social inequality in type 2 diabetes prevalence and that socially vulnerable type 2 diabetes patients benefit less than average from health services. Based on ethnographic fieldwork carried out between February 2017 and March 2018 in a Danish specialized outpatient clinic, this article focuses on patient work among socially vulnerable type 2 diabetes patients. Through attending to the border zone between formal health care and self-care, we show that patients do a lot of work requiring skills, resources, and initiative, to access and benefit from formal care. This work is complex and implicit in the organization of care. Patients' social situations, especially their employment situation, complicate getting patient work done. Attending to patient work and implicit tasks in care organization may help us to see how social inequality in type 2 diabetes outcomes develops, and may be combated.

Keywords: Denmark; access to care; ethnography; patient work; qualitative; self-care; socially vulnerable patients; type 2 diabetes care

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