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Home Health Care Serv Q. 2021 Jan-Mar;40(1):16-26. doi: 10.1080/01621424.2020.1816522. Epub 2020 Aug 31.

The use of community advisory boards in pragmatic clinical trials: The case of the adult day services plus project.

Home health care services quarterly

Keith A Anderson, Holly Dabelko-Schoeny, Sokha Koeuth, Katherine Marx, Laura N Gitlin, Joseph E Gaugler

Affiliations

  1. Cheryl Milkes Moore Endowed Professor, School of Social Work, University of Texas at Arlington , Arlington, Texas, USA.
  2. College of Social Work, The Ohio State University , Columbus, Ohio, USA.
  3. College of Nursing and Health Professions, Drexel University , Philadelphia, Pennsylvania, USA.
  4. Center for Innovative Care in Aging, Johns Hopkins University , Baltimore, Maryland, USA.
  5. School of Public Health, University of Minnesota , Minneapolis, Minnesota, USA.

PMID: 32865476 PMCID: PMC7855735 DOI: 10.1080/01621424.2020.1816522

Abstract

Community advisory boards (CABs) have become increasingly common and important in translational research in health care including studies focusing on home and community-based services. CABs are composed of stakeholders who share interest in research projects and typically include patients/clients, practitioners, community members, policymakers, and researchers. CABs advise researchers on issues ranging from research design and recruitment to implementation and dissemination. In this article, the researchers detail their experiences with the CAB for a pragmatic clinical trail of Adult Day Services (ADS) Plus, an education and support intervention for family caregivers of older adults with dementia using adult day services. Lessons learned, guidelines, and best practices are then presented for developing and working with a CAB in healthcare research.

Keywords: Adult day services; community advisory board; pragmatic clinical trial; translational research

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