Advanced Search
Display options
Filter resources
Text Availability
Article type
Publication date
Species
Language
Sex
Age
Showing 1 to 12 of 12 entries
Sorted by: Best Match Show Resources per page
Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL).

Journal of patient-reported outcomes

Andersen JB, Midttun K, Feragen KJB.
PMID: 30806830
J Patient Rep Outcomes. 2019 Feb 26;3(1):15. doi: 10.1186/s41687-019-0101-x.

BACKGROUND: Common variable immunodeficiency (CVID) and other primary antibody deficiencies (PAD) are a heterogeneous group of > 300 congenital disorders affecting the immune system. Until recently, efforts to measure health-related quality of life (QoL) in PAD patients have utilised...

Cite
Andersen JB, Midttun K, Feragen KJB. Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL). J Patient Rep Outcomes. 2019;3(1):15doi: 10.1186/s41687-019-0101-x.
Andersen, J. B., Midttun, K., & Feragen, K. J. B. (2019). Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL). Journal of patient-reported outcomes, 3(1), 15. https://doi.org/10.1186/s41687-019-0101-x
Andersen, Jintana B, et al. "Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL)." Journal of patient-reported outcomes vol. 3,1 (2019): 15. doi: https://doi.org/10.1186/s41687-019-0101-x
Andersen JB, Midttun K, Feragen KJB. Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL). J Patient Rep Outcomes. 2019 Feb 26;3(1):15. doi: 10.1186/s41687-019-0101-x. PMID: 30806830; PMCID: PMC6391500.
Copy Download .nbib Format: NLM
Sexual Orientation in Individuals With Congenital Adrenal Hyperplasia: A Systematic Review.

Frontiers in behavioral neuroscience

Daae E, Feragen KB, Waehre A, Nermoen I, Falhammar H.
PMID: 32231525
Front Behav Neurosci. 2020 Mar 13;14:38. doi: 10.3389/fnbeh.2020.00038. eCollection 2020.

Congenital adrenal hyperplasia (CAH) is a genetic condition of the steroidogenic enzymes in the adrenal cortex normally leading to variable degrees of cortisol and aldosterone deficiency as well as androgen excess. Exposure to androgens prenatally might lead to ambiguous...

Cite
Daae E, Feragen KB, Waehre A, et al. Sexual Orientation in Individuals With Congenital Adrenal Hyperplasia: A Systematic Review. Front Behav Neurosci. 2020;14:38doi: 10.3389/fnbeh.2020.00038.
Daae, E., Feragen, K. B., Waehre, A., Nermoen, I., & Falhammar, H. (2020). Sexual Orientation in Individuals With Congenital Adrenal Hyperplasia: A Systematic Review. Frontiers in behavioral neuroscience, 1438. https://doi.org/10.3389/fnbeh.2020.00038
Daae, Elisabeth, et al. "Sexual Orientation in Individuals With Congenital Adrenal Hyperplasia: A Systematic Review." Frontiers in behavioral neuroscience vol. 14 (2020): 38. doi: https://doi.org/10.3389/fnbeh.2020.00038
Daae E, Feragen KB, Waehre A, Nermoen I, Falhammar H. Sexual Orientation in Individuals With Congenital Adrenal Hyperplasia: A Systematic Review. Front Behav Neurosci. 2020 Mar 13;14:38. doi: 10.3389/fnbeh.2020.00038. eCollection 2020. PMID: 32231525; PMCID: PMC7082355.
Copy Download .nbib Format: NLM
'I knew it wasn't normal, I just didn't know what to do about it': adversity and caregiver support when growing up in a family with Huntington's disease.

Psychology & health

Kjoelaas S, Jensen TK, Feragen KB.
PMID: 33887998
Psychol Health. 2021 Apr 22;1-19. doi: 10.1080/08870446.2021.1907387. Epub 2021 Apr 22.

OBJECTIVE: Excessive adversity in childhood can have long-term consequences on health and well-being. One group of children that may be at risk are those who grow up with a parent with Huntington's disease (HD). Despite this, there is little...

Cite
Kjoelaas S, Jensen TK, Feragen KB. 'I knew it wasn't normal, I just didn't know what to do about it': adversity and caregiver support when growing up in a family with Huntington's disease. Psychol Health. 2021;1-19doi: 10.1080/08870446.2021.1907387.
Kjoelaas, S., Jensen, T. K., & Feragen, K. B. (2021). 'I knew it wasn't normal, I just didn't know what to do about it': adversity and caregiver support when growing up in a family with Huntington's disease. Psychology & health, 1-19. https://doi.org/10.1080/08870446.2021.1907387
Kjoelaas, Siri, et al. "'I knew it wasn't normal, I just didn't know what to do about it': adversity and caregiver support when growing up in a family with Huntington's disease." Psychology & health vol. (2021): 1-19. doi: https://doi.org/10.1080/08870446.2021.1907387
Kjoelaas S, Jensen TK, Feragen KB. 'I knew it wasn't normal, I just didn't know what to do about it': adversity and caregiver support when growing up in a family with Huntington's disease. Psychol Health. 2021 Apr 22;1-19. doi: 10.1080/08870446.2021.1907387. Epub 2021 Apr 22. PMID: 33887998.
Copy Download .nbib Format: NLM
Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition.

The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

Feragen KB, Stock NM, Myhre A, Due-Tønnessen BJ.
PMID: 31426676
Cleft Palate Craniofac J. 2020 Feb;57(2):228-237. doi: 10.1177/1055665619869146. Epub 2019 Aug 19.

BACKGROUND: The birth of a child with a congenital craniofacial anomaly (CFA) can have a profound psychological impact on the family. Despite the complexity and variability in treatment for these rare conditions, few studies have been conducted into parents'...

Cite
Feragen KB, Stock NM, Myhre A, et al. Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. Cleft Palate Craniofac J. 2019;57(2):228-237doi: 10.1177/1055665619869146.
Feragen, K. B., Stock, N. M., Myhre, A., & Due-Tønnessen, B. J. (2020). Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 57(2), 228-237. https://doi.org/10.1177/1055665619869146
Feragen, Kristin Billaud, et al. "Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition." The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association vol. 57,2 (2020): 228-237. doi: https://doi.org/10.1177/1055665619869146
Feragen KB, Stock NM, Myhre A, Due-Tønnessen BJ. Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. Cleft Palate Craniofac J. 2020 Feb;57(2):228-237. doi: 10.1177/1055665619869146. Epub 2019 Aug 19. PMID: 31426676.
Copy Download .nbib Format: NLM
Scalable Robust Principal Component Analysis Using Grassmann Averages.

IEEE transactions on pattern analysis and machine intelligence

Hauberg S, Feragen A, Enficiaud R, Black MJ.
PMID: 26731634
IEEE Trans Pattern Anal Mach Intell. 2016 Nov;38(11):2298-2311. doi: 10.1109/TPAMI.2015.2511743. Epub 2015 Dec 23.

In large datasets, manual data verification is impossible, and we must expect the number of outliers to increase with data size. While principal component analysis (PCA) can reduce data size, and scalable solutions exist, it is well-known that outliers...

Cite
Hauberg S, Feragen A, Enficiaud R, et al. Scalable Robust Principal Component Analysis Using Grassmann Averages. IEEE Trans Pattern Anal Mach Intell. 2015;38(11):2298-2311doi: 10.1109/TPAMI.2015.2511743.
Hauberg, S., Feragen, A., Enficiaud, R., & Black, M. J. (2016). Scalable Robust Principal Component Analysis Using Grassmann Averages. IEEE transactions on pattern analysis and machine intelligence, 38(11), 2298-2311. https://doi.org/10.1109/TPAMI.2015.2511743
Hauberg, Sren, et al. "Scalable Robust Principal Component Analysis Using Grassmann Averages." IEEE transactions on pattern analysis and machine intelligence vol. 38,11 (2016): 2298-2311. doi: https://doi.org/10.1109/TPAMI.2015.2511743
Hauberg S, Feragen A, Enficiaud R, Black MJ. Scalable Robust Principal Component Analysis Using Grassmann Averages. IEEE Trans Pattern Anal Mach Intell. 2016 Nov;38(11):2298-2311. doi: 10.1109/TPAMI.2015.2511743. Epub 2015 Dec 23. PMID: 26731634.
Copy Download .nbib Format: NLM
Toward a Conceptual and Methodological Shift in Craniofacial Research.

The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

Stock NM, Feragen KB, Moss TP, Rumsey N.
PMID: 34162053
Cleft Palate Craniofac J. 2018 Jan;55(1):105-111. doi: 10.1177/1055665617721925. Epub 2017 Dec 14.

OBJECTIVE: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this variability, and to offer alternative perspectives and approaches...

Cite
Stock NM, Feragen KB, Moss TP, et al. Toward a Conceptual and Methodological Shift in Craniofacial Research. Cleft Palate Craniofac J. 2017;55(1):105-111doi: 10.1177/1055665617721925.
Stock, N. M., Feragen, K. B., Moss, T. P., & Rumsey, N. (2018). Toward a Conceptual and Methodological Shift in Craniofacial Research. The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 55(1), 105-111. https://doi.org/10.1177/1055665617721925
Stock, Nicola Marie, et al. "Toward a Conceptual and Methodological Shift in Craniofacial Research." The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association vol. 55,1 (2018): 105-111. doi: https://doi.org/10.1177/1055665617721925
Stock NM, Feragen KB, Moss TP, Rumsey N. Toward a Conceptual and Methodological Shift in Craniofacial Research. Cleft Palate Craniofac J. 2018 Jan;55(1):105-111. doi: 10.1177/1055665617721925. Epub 2017 Dec 14. PMID: 34162053.
Copy Download .nbib Format: NLM
"Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference.

Qualitative health research

Feragen KJB, Myhre A, Stock NM.
PMID: 34596475
Qual Health Res. 2021 Oct 01;10497323211039205. doi: 10.1177/10497323211039205. Epub 2021 Oct 01.

To investigate parents' reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three themes emerged: "Managing emotions: A dynamic...

Cite
Feragen KJB, Myhre A, Stock NM. "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qual Health Res. 2021;10497323211039205doi: 10.1177/10497323211039205.
Feragen, K. J. B., Myhre, A., & Stock, N. M. (2021). "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qualitative health research, 10497323211039205. https://doi.org/10.1177/10497323211039205
Feragen, Kristin J Billaud, et al. ""Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference." Qualitative health research vol. (2021): 10497323211039205. doi: https://doi.org/10.1177/10497323211039205
Feragen KJB, Myhre A, Stock NM. "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qual Health Res. 2021 Oct 01;10497323211039205. doi: 10.1177/10497323211039205. Epub 2021 Oct 01. PMID: 34596475.
Copy Download .nbib Format: NLM
Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference.

Contemporary clinical trials communications

Kling J, Nordgreen T, Kvalem IL, Williamson H, Feragen KB.
PMID: 34877433
Contemp Clin Trials Commun. 2021 Nov 18;24:100869. doi: 10.1016/j.conctc.2021.100869. eCollection 2021 Dec.

Online interventions have the potential to reach individuals who are otherwise difficult to engage due to stigma and sensitive topics. However, these individuals also tend to be hard to recruit in clinical trials, a crucial step in order to...

Cite
Kling J, Nordgreen T, Kvalem IL, et al. Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference. Contemp Clin Trials Commun. 2021;24:100869doi: 10.1016/j.conctc.2021.100869.
Kling, J., Nordgreen, T., Kvalem, I. L., Williamson, H., & Feragen, K. B. (2021). Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference. Contemporary clinical trials communications, 24100869. https://doi.org/10.1016/j.conctc.2021.100869
Kling, Johanna, et al. "Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference." Contemporary clinical trials communications vol. 24 (2021): 100869. doi: https://doi.org/10.1016/j.conctc.2021.100869
Kling J, Nordgreen T, Kvalem IL, Williamson H, Feragen KB. Recruiting hard-to-engage groups to online psychosocial interventions: Experiences from an RCT study targeting adolescents with a visible difference. Contemp Clin Trials Commun. 2021 Nov 18;24:100869. doi: 10.1016/j.conctc.2021.100869. eCollection 2021 Dec. PMID: 34877433; PMCID: PMC8628201.
Copy Download .nbib Format: NLM
"Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference.

Qualitative health research

Feragen KJB, Myhre A, Stock NM.
PMID: 34596475
Qual Health Res. 2022 Jan;32(1):3-15. doi: 10.1177/10497323211039205. Epub 2021 Oct 01.

To investigate parents' reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three themes emerged: "Managing emotions: A dynamic...

Cite
Feragen KJB, Myhre A, Stock NM. "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qual Health Res. 2021;32(1):3-15doi: 10.1177/10497323211039205.
Feragen, K. J. B., Myhre, A., & Stock, N. M. (2022). "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qualitative health research, 32(1), 3-15. https://doi.org/10.1177/10497323211039205
Feragen, Kristin J Billaud, et al. ""Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference." Qualitative health research vol. 32,1 (2022): 3-15. doi: https://doi.org/10.1177/10497323211039205
Feragen KJB, Myhre A, Stock NM. "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qual Health Res. 2022 Jan;32(1):3-15. doi: 10.1177/10497323211039205. Epub 2021 Oct 01. PMID: 34596475.
Copy Download .nbib Format: NLM
Toward a theory of statistical tree-shape analysis.

IEEE transactions on pattern analysis and machine intelligence

Feragen A, Lo P, de Bruijne M, Nielsen M, Lauze F.
PMID: 23267202
IEEE Trans Pattern Anal Mach Intell. 2013 Aug;35(8):2008-21. doi: 10.1109/tpami.2012.265.

To develop statistical methods for shapes with a tree-structure, we construct a shape space framework for tree-shapes and study metrics on the shape space. This shape space has singularities which correspond to topological transitions in the represented trees. We...

Cite
Feragen A, Lo P, de Bruijne M, et al. Toward a theory of statistical tree-shape analysis. IEEE Trans Pattern Anal Mach Intell. 2013;35(8):2008-21doi: 10.1109/tpami.2012.265.
Feragen, A., Lo, P., de Bruijne, M., Nielsen, M., & Lauze, F. (2013). Toward a theory of statistical tree-shape analysis. IEEE transactions on pattern analysis and machine intelligence, 35(8), 2008-21. https://doi.org/10.1109/tpami.2012.265
Feragen, Aasa, et al. "Toward a theory of statistical tree-shape analysis." IEEE transactions on pattern analysis and machine intelligence vol. 35,8 (2013): 2008-21. doi: https://doi.org/10.1109/tpami.2012.265
Feragen A, Lo P, de Bruijne M, Nielsen M, Lauze F. Toward a theory of statistical tree-shape analysis. IEEE Trans Pattern Anal Mach Intell. 2013 Aug;35(8):2008-21. doi: 10.1109/tpami.2012.265. PMID: 23267202.
Copy Download .nbib Format: NLM
Enforcing necessary non-negativity constraints for common diffusion MRI models using sum of squares programming.

NeuroImage

Dela Haije T, Özarslan E, Feragen A.
PMID: 31846758
Neuroimage. 2020 Apr 01;209:116405. doi: 10.1016/j.neuroimage.2019.116405. Epub 2019 Dec 14.

In this work we investigate the use of sum of squares constraints for various diffusion-weighted MRI models, with a goal of enforcing strict, global non-negativity of the diffusion propagator. We formulate such constraints for the mean apparent propagator model...

Cite
Dela Haije T, Özarslan E, Feragen A. Enforcing necessary non-negativity constraints for common diffusion MRI models using sum of squares programming. Neuroimage. 2019;209:116405doi: 10.1016/j.neuroimage.2019.116405.
Dela Haije, T., Özarslan, E., & Feragen, A. (2020). Enforcing necessary non-negativity constraints for common diffusion MRI models using sum of squares programming. NeuroImage, 209116405. https://doi.org/10.1016/j.neuroimage.2019.116405
Dela Haije, Tom, et al. "Enforcing necessary non-negativity constraints for common diffusion MRI models using sum of squares programming." NeuroImage vol. 209 (2020): 116405. doi: https://doi.org/10.1016/j.neuroimage.2019.116405
Dela Haije T, Özarslan E, Feragen A. Enforcing necessary non-negativity constraints for common diffusion MRI models using sum of squares programming. Neuroimage. 2020 Apr 01;209:116405. doi: 10.1016/j.neuroimage.2019.116405. Epub 2019 Dec 14. PMID: 31846758.
Copy Download .nbib Format: NLM
"Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference.

Qualitative health research

Feragen KJB, Myhre A, Stock NM.
PMID: 34596475
Qual Health Res. 2022 Jan;32(1):3-15. doi: 10.1177/10497323211039205. Epub 2021 Oct 01.

To investigate parents' reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three themes emerged: "Managing emotions: A dynamic...

Cite
Feragen KJB, Myhre A, Stock NM. "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qual Health Res. 2021;32(1):3-15doi: 10.1177/10497323211039205.
Feragen, K. J. B., Myhre, A., & Stock, N. M. (2022). "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qualitative health research, 32(1), 3-15. https://doi.org/10.1177/10497323211039205
Feragen, Kristin J Billaud, et al. ""Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference." Qualitative health research vol. 32,1 (2022): 3-15. doi: https://doi.org/10.1177/10497323211039205
Feragen KJB, Myhre A, Stock NM. "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference. Qual Health Res. 2022 Jan;32(1):3-15. doi: 10.1177/10497323211039205. Epub 2021 Oct 01. PMID: 34596475.
Copy Download .nbib Format: NLM
Showing 1 to 12 of 12 entries