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Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years.

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

Edwards TC, Emerson J, Genatossio A, McNamara S, Goss C, Patrick DL, Onchiri F, Rosenfeld M.
PMID: 29358075
J Cyst Fibros. 2018 Sep;17(5):680-686. doi: 10.1016/j.jcf.2017.12.008. Epub 2018 Feb 01.

PURPOSE: Patient-reported outcomes are important clinical trial endpoints. Young children may not be able to reliably report on how they feel or function, so observer-reported outcomes (ObsROs) may be more appropriate for them. The purpose of this study was...

Yoga as a Therapy for Adolescents and Young Adults With Cystic Fibrosis: A Pilot Study.

Global advances in health and medicine

Ruddy J, Emerson J, McNamara S, Genatossio A, Breuner C, Weber T, Rosenfeld M.
PMID: 26665020
Glob Adv Health Med. 2015 Nov;4(6):32-6. doi: 10.7453/gahmj.2015.061. Epub 2015 Nov 01.

RATIONALE: Yoga has been shown to improve outcomes in patients with asthma but has not been investigated in cystic fibrosis (CF) patients.METHODS: This was a prospective pilot study to evaluate the safety of a standardized yoga program among CF...

Showing 1 to 2 of 2 entries