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Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms.

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

Freeman AJ, Sathe M, Aliaj E, Borowitz D, Fogarty B, Goss CH, Freedman S, Heltshe SL, Khan U, Riva D, Roman C, Romasco M, Schwarzenberg SJ, Ufret-Vincenty CA, Moshiree B.
PMID: 33451899
J Cyst Fibros. 2021 Jul;20(4):598-604. doi: 10.1016/j.jcf.2020.12.021. Epub 2021 Jan 13.

BACKGROUND: Gastrointestinal (GI) involvement among persons with cystic fibrosis (CF) is highly prevalent, representing a significant source of morbidity. Persons with CF have identified GI concerns as a top research priority, yet universal clinical outcome measures capturing many of...

Cite
Freeman AJ, Sathe M, Aliaj E, et al. Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms. J Cyst Fibros. 2021;20(4):598-604doi: 10.1016/j.jcf.2020.12.021.
Freeman, A. J., Sathe, M., Aliaj, E., Borowitz, D., Fogarty, B., Goss, C. H., Freedman, S., Heltshe, S. L., Khan, U., Riva, D., Roman, C., Romasco, M., Schwarzenberg, S. J., Ufret-Vincenty, C. A., & Moshiree, B. (2021). Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society, 20(4), 598-604. https://doi.org/10.1016/j.jcf.2020.12.021
Freeman, A Jay, et al. "Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms." Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society vol. 20,4 (2021): 598-604. doi: https://doi.org/10.1016/j.jcf.2020.12.021
Freeman AJ, Sathe M, Aliaj E, Borowitz D, Fogarty B, Goss CH, Freedman S, Heltshe SL, Khan U, Riva D, Roman C, Romasco M, Schwarzenberg SJ, Ufret-Vincenty CA, Moshiree B. Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms. J Cyst Fibros. 2021 Jul;20(4):598-604. doi: 10.1016/j.jcf.2020.12.021. Epub 2021 Jan 13. PMID: 33451899; PMCID: PMC8273187.
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Utilization of electronic patient-reported outcome measures in cystic fibrosis research: Application to the GALAXY study.

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

Sathe M, Moshiree B, Vu PT, Khan U, Heltshe SL, Romasco M, Freedman SD, Schwarzenberg SJ, Goss CH, Freeman AJ.
PMID: 34305007
J Cyst Fibros. 2021 Jul;20(4):605-611. doi: 10.1016/j.jcf.2021.07.002. Epub 2021 Jul 22.

BACKGROUND: The Food and Drug Administration considers patient-reported outcome measures (PROMs) an essential part of clinical research studies for approval of new drugs and new indications for existing drugs. GALAXY evaluated the feasibility of electronic PROMs (ePROMS) to conduct...

Cite
Sathe M, Moshiree B, Vu PT, et al. Utilization of electronic patient-reported outcome measures in cystic fibrosis research: Application to the GALAXY study. J Cyst Fibros. 2021;20(4):605-611doi: 10.1016/j.jcf.2021.07.002.
Sathe, M., Moshiree, B., Vu, P. T., Khan, U., Heltshe, S. L., Romasco, M., Freedman, S. D., Schwarzenberg, S. J., Goss, C. H., & Freeman, A. J. (2021). Utilization of electronic patient-reported outcome measures in cystic fibrosis research: Application to the GALAXY study. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society, 20(4), 605-611. https://doi.org/10.1016/j.jcf.2021.07.002
Sathe, Meghana, et al. "Utilization of electronic patient-reported outcome measures in cystic fibrosis research: Application to the GALAXY study." Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society vol. 20,4 (2021): 605-611. doi: https://doi.org/10.1016/j.jcf.2021.07.002
Sathe M, Moshiree B, Vu PT, Khan U, Heltshe SL, Romasco M, Freedman SD, Schwarzenberg SJ, Goss CH, Freeman AJ. Utilization of electronic patient-reported outcome measures in cystic fibrosis research: Application to the GALAXY study. J Cyst Fibros. 2021 Jul;20(4):605-611. doi: 10.1016/j.jcf.2021.07.002. Epub 2021 Jul 22. PMID: 34305007; PMCID: PMC8403637.
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