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Ambrosone CB, Ciupak GL, Bandera EV, et al. Conducting Molecular Epidemiological Research in the Age of HIPAA: A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women. J Oncol. 2009;2009:871250doi: 10.1155/2009/871250.
Ambrosone, C. B., Ciupak, G. L., Bandera, E. V., Jandorf, L., Bovbjerg, D. H., Zirpoli, G., Pawlish, K., Godbold, J., Furberg, H., Fatone, A., Valdimarsdottir, H., Yao, S., Li, Y., Hwang, H., Davis, W., Roberts, M., Sucheston, L., Demissie, K., Amend, K. L., Tartter, P., Reilly, J., Pace, B. W., Rohan, T., Sparano, J., Raptis, G., Castaldi, M., Estabrook, A., Feldman, S., Weltz, C., & Kemeny, M. (2009). Conducting Molecular Epidemiological Research in the Age of HIPAA: A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women. Journal of oncology, 2009871250. https://doi.org/10.1155/2009/871250
Ambrosone, Christine B, et al. "Conducting Molecular Epidemiological Research in the Age of HIPAA: A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women." Journal of oncology vol. 2009 (2009): 871250. doi: https://doi.org/10.1155/2009/871250
Ambrosone CB, Ciupak GL, Bandera EV, Jandorf L, Bovbjerg DH, Zirpoli G, Pawlish K, Godbold J, Furberg H, Fatone A, Valdimarsdottir H, Yao S, Li Y, Hwang H, Davis W, Roberts M, Sucheston L, Demissie K, Amend KL, Tartter P, Reilly J, Pace BW, Rohan T, Sparano J, Raptis G, Castaldi M, Estabrook A, Feldman S, Weltz C, Kemeny M. Conducting Molecular Epidemiological Research in the Age of HIPAA: A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women. J Oncol. 2009;2009:871250. doi: 10.1155/2009/871250. Epub 2009 Oct 25. PMID: 19865486; PMCID: PMC2766507.
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J Oncol. 2009;2009:871250. doi: 10.1155/2009/871250. Epub 2009 Oct 25.

Conducting Molecular Epidemiological Research in the Age of HIPAA: A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women.

Journal of oncology

Christine B Ambrosone, Gregory L Ciupak, Elisa V Bandera, Lina Jandorf, Dana H Bovbjerg, Gary Zirpoli, Karen Pawlish, James Godbold, Helena Furberg, Anne Fatone, Heiddis Valdimarsdottir, Song Yao, Yulin Li, Helena Hwang, Warren Davis, Michelle Roberts, Lara Sucheston, Kitaw Demissie, Kandace L Amend, Paul Tartter, James Reilly, Benjamin W Pace, Thomas Rohan, Joseph Sparano, George Raptis, Maria Castaldi, Alison Estabrook, Sheldon Feldman, Christina Weltz, Margaret Kemeny

Affiliations

  1. Department of Cancer Prevention & Control, Roswell Park Cancer Institute, Elm & Carlton Streets, Buffalo, NY 14263, USA.

PMID: 19865486 PMCID: PMC2766507 DOI: 10.1155/2009/871250

Abstract

Breast cancer in African-American (AA) women occurs at an earlier age than in European-American (EA) women and is more likely to have aggressive features associated with poorer prognosis, such as high-grade and negative estrogen receptor (ER) status. The mechanisms underlying these differences are unknown. To address this, we conducted a case-control study to evaluate risk factors for high-grade ER- disease in both AA and EA women. With the onset of the Health Insurance Portability and Accountability Act of 1996, creative measures were needed to adapt case ascertainment and contact procedures to this new environment of patient privacy. In this paper, we report on our approach to establishing a multicenter study of breast cancer in New York and New Jersey, provide preliminary distributions of demographic and pathologic characteristics among case and control participants by race, and contrast participation rates by approaches to case ascertainment, with discussion of strengths and weaknesses.

References

  1. Am J Epidemiol. 1994 Oct 1;140(7):643-8 - PubMed
  2. Am J Ophthalmol. 2006 Mar;141(3):543-546 - PubMed
  3. Am J Epidemiol. 1984 Dec;120(6):825-33 - PubMed
  4. Am J Hum Biol. 2007 May-Jun;19(3):319-26 - PubMed
  5. Breast Cancer Res Treat. 1995 Jul;35(1):51-60 - PubMed
  6. J Natl Cancer Inst. 1995 Jun 7;87(11):827-35 - PubMed
  7. Cancer Res. 2006 Sep 1;66(17):8327-30 - PubMed
  8. Am J Public Health. 1990 Mar;80(3):323-6 - PubMed
  9. Cancer Epidemiol Biomarkers Prev. 2007 Oct;16(10):2072-6 - PubMed
  10. Epidemiology. 2006 May;17(3):252-4 - PubMed
  11. Am J Public Health. 2006 May;96(5):926-31 - PubMed
  12. Med Sci Sports Exerc. 1998 Feb;30(2):266-74 - PubMed
  13. Breast Cancer Res Treat. 2002 Jun;74(3):235-54 - PubMed
  14. Am J Epidemiol. 1992 Jan 15;135(2):210-22 - PubMed

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