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Greenberg CC, Wind JK, Chang GJ, et al. Stakeholder engagement for comparative effectiveness research in cancer care: experience of the DEcIDE Cancer Consortium. J Comp Eff Res. 2013;2(2):117-25doi: 10.2217/cer.12.80.
Greenberg, C. C., Wind, J. K., Chang, G. J., Chen, R. C., & Schrag, D. (2013). Stakeholder engagement for comparative effectiveness research in cancer care: experience of the DEcIDE Cancer Consortium. Journal of comparative effectiveness research, 2(2), 117-25. https://doi.org/10.2217/cer.12.80
Greenberg, Caprice C, et al. "Stakeholder engagement for comparative effectiveness research in cancer care: experience of the DEcIDE Cancer Consortium." Journal of comparative effectiveness research vol. 2,2 (2013): 117-25. doi: https://doi.org/10.2217/cer.12.80
Greenberg CC, Wind JK, Chang GJ, Chen RC, Schrag D. Stakeholder engagement for comparative effectiveness research in cancer care: experience of the DEcIDE Cancer Consortium. J Comp Eff Res. 2013 Mar;2(2):117-25. doi: 10.2217/cer.12.80. PMID: 24236554.
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J Comp Eff Res. 2013 Mar;2(2):117-25. doi: 10.2217/cer.12.80.

Stakeholder engagement for comparative effectiveness research in cancer care: experience of the DEcIDE Cancer Consortium.

Journal of comparative effectiveness research

Caprice C Greenberg, Jennifer K Wind, George J Chang, Ronald C Chen, Deborah Schrag

Affiliations

  1. Department of Medical Oncology, Center for Outcomes & Policy Research, Dana-Farber Cancer Institute, Boston, MA, USA.

PMID: 24236554 DOI: 10.2217/cer.12.80

Abstract

Stakeholder input is a critical component of comparative effectiveness research. To ensure that the research activities of the Developing Evidence to Inform Decisions about Effectiveness (DEcIDE) Network, supported by the Agency for Healthcare Research and Quality, translate into the greatest impact for everyday practice and policy-making in cancer, we were tasked with soliciting stakeholder input regarding priority areas in cancer-related comparative effectiveness research for the DEcIDE Cancer Consortium. Given the increasing emphasis on stakeholder engagement in research, many investigators are facing a similar task, yet there is limited literature to guide such efforts, particularly in cancer care. To help fill this gap, we present our approach to operationalizing stakeholder engagement and discuss it in the context of other recent developments in the area. We describe challenges encountered in convening stakeholders from multiple vantage points to prioritize topics and strategies used to mitigate these barriers. We offer several recommendations regarding how to best solicit stakeholder input to inform comparative effectiveness research in cancer care. These recommendations can inform other initiatives currently facing the challenges of engaging stakeholders in priority setting for cancer.

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