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Flynn S, Hulbert-Williams N, Hulbert-Williams L, et al. Psychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literature. J Intellect Disabil. 2015;19(2):178-94doi: 10.1177/1744629514565680.
Flynn, S., Hulbert-Williams, N., Hulbert-Williams, L., & Bramwell, R. (2015). Psychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literature. Journal of intellectual disabilities : JOID, 19(2), 178-94. https://doi.org/10.1177/1744629514565680
Flynn, Samantha, et al. "Psychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literature." Journal of intellectual disabilities : JOID vol. 19,2 (2015): 178-94. doi: https://doi.org/10.1177/1744629514565680
Flynn S, Hulbert-Williams N, Hulbert-Williams L, Bramwell R. Psychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literature. J Intellect Disabil. 2015 Jun;19(2):178-94. doi: 10.1177/1744629514565680. Epub 2015 Jan 07. PMID: 25567097.
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J Intellect Disabil. 2015 Jun;19(2):178-94. doi: 10.1177/1744629514565680. Epub 2015 Jan 07.

Psychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literature.

Journal of intellectual disabilities : JOID

Samantha Flynn, Nicholas Hulbert-Williams, Lee Hulbert-Williams, Ros Bramwell

Affiliations

  1. University of Chester, UK [email protected].
  2. University of Chester, UK.

PMID: 25567097 DOI: 10.1177/1744629514565680

Abstract

BACKGROUND: Increased life expectancy has led to an increase in diagnoses of chronic illness in people with an intellectual disability; despite this increase, research about the psychological impact is rare. This review explored the psychosocial experiences of chronic illness in adults with an intellectual disability, revealing potential predictors and moderators of these experiences.

METHODS: Online databases were systematically searched to identify relevant literature, using predefined inclusion criteria. Of the 25,058 titles initially identified, 4 were included, that is, those collecting data on people with an intellectual disability and diagnosed with cancer (n = 2), chronic pain (n = 1) and diabetes (n = 1).

RESULTS: Narrative synthesis of the data identified six themes, namely, (1) delayed diagnosis, (2) information, communication and understanding, (3) negative psychological consequences, (4) negative physical consequences, (5) social perception and (6) social support.

CONCLUSIONS: There are unmet needs within this population, including a lack of assistance in understanding their illness. A substantial gap in the literature should be addressed through further empirical work.

© The Author(s) 2015.

Keywords: chronic illness; intellectual disability; psychosocial needs; systematic review

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